ill all the time

Posted , 2 users are following.

Hi, I just wondered if any ibd sufferers are ill all the time like me. I think there is one week in the month where I feel ok, I have 2 young children and if they are ill then I catch it guaranteed. I am taking B12 and folic as I cannot tollerate iron and am borderline anemic. I am in remission and have been for a month or so now. I have had a sub total colectomy. I am just fed up with having a cold or flu like symptoms or just being so exhausted I have to rest. I have very dry skin and I also suffer from hairloss. Who else gets ill all the time? (not nesessarily flare ups?) 

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  • Posted

    Hi Carly, sorry you are feeling yuck. Are you UC? You mention on another discussion having a pouch soon. Is that still your plan? The symptoms are prob from the anaemia and hairloss from the drugs, which ones? I presume you still have the last part of colon, is that where the ibd symptoms are from? Also have they checked you are not underactive thyroid? Hope you feel better soon.

    Sheila.

     

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    • Posted

      hi Sheila thanks for your reply. I use Asacol  & colifoam but the hairloss started from the predisoline, remicade, cortizone or colifoam, penttassa, the list goes on. I am only on asacol now. No I have not been checked for thyroid. I am due to see my stoma nurse next week and I have my pre op the following week for my j pouch. Your positivity regarding the j pouch had a part in me deciding to go for it. I am positive, hairloss, anemia I can deal with even flare ups really. its being ill with cold, rundown, flu like that |I struggle with. Carly
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    • Posted

      Hi Carly, I sent you a long post, don't know why but it was moderated and lost!

      Ask questions at your appt about the surgery eg do they remove the stump at the first op? My son had the stump removed leaving the muscles and some tissue for attaching to the pouch and so has no colon and no UC, good bye Asacol. but i do know some surgeons leave the last part of colon which leaves behind some disease, not good. My son feels no difference from before his UC and he uses toilet normally so the stump is not needed!

      Vitamin B especially Biotin is good for hair loss due to illness, he added to diet and hair grew back but no disease no meds and good food absorption obviously helped.

      Do chose a specialist hosp for your pouch surgery as that is important and for aftercare too.

      Ask anything you like, it has been a long journey and we did lots of research, happy to share.

      Sheila. 

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    • Posted

      Hi Sheila

      Sorry your last message was lost. Yes I do beleive I am in good hands  my surgeon is also private with good breeding. They did a good job with my stoma so I do have faith. I have been told they will try to takeaway stump but of course they wont know till the time. Yes I have 2 children at school and so I pick up a lot of bugs. I take B12 and folic but \i may try Biotin, thank you. I am due to see stoma nurse next week so she will see if I have the right frame of mind and are ready for the op. Hopefully I would have recovered by then although blood is back. I find anti-bios upset my output so we shall see......will keep u informed. bye for now. Carly

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