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ILL HEALTH RETIREMENT

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lynne58044
lynne58044

I have been diagnosed with bronchiestasis for 6 years. I also have pseuomonas. I am currently treated with Colomycin nebilisers twice a day and nebusol 7% Azithroycin antibiotics and normal inhalers. We have moved office and I have only visited the office for once a week over a four week period. I have have had two infections which I have treated and now my lungs start inflamming within 20 minutes of being in the office. I now only go in the office for a few minutes once a week to collect paper work. The problem is my lung function has not risen and I am struggling with fatigue  cough, chest pain, increased sputum production. I  currently do daily physio and on a monday and friday I do 2 hour intense physio sessions. I drink 3 liters of  water a day. I only work 6 hours per day over 3 days as I do not have the energy to do more. I am considering applying for ill health retirement has  anyone gone through this process. I am 50 years old. The office is not air conditioned and was painted several months ago so I can not figure out what is causing my lungs to inflame

0 likes, 6 replies

6 Replies

  • lesley05714
    lesley05714 lynne58044

    Posted

    Hi Lynne,

    pseudomonas treatment can be found on this site, and I think this is causing the problem.

    I have bronchiestasis and after the specialist finally identified the bugs from my last sputem test, I am on antibiotics and after retiring last September, I have been able to return to work part time. Bronchiestasis can be managed, although it long term antibiotics and they must be the right ones.

    So it sounds as if the inflamation is being caused by pseuomonas. Put it in on the search facility, top right; I do hope that you get it sorted...it took months to get sorted for me, don't give up. Let me know how it progresses.

    Blessings

    Lesley

  • lynne58044
    lynne58044

    Posted

    I am on colomycin nebilisers and azithromycin antiobiotics  for pseudmonas and it keeps me stable Treated the acute infections with 3 weeks of doxycyline as instructed by my respiritory consultant but lung function has not returned back to normal  may be I need to give it alot longer to return back to normal.
    • lesley05714
      lesley05714 lynne58044

      Posted

      Hi Lynne,

      I recognise azithromycin...I have that 250mg one tablet 3 times every week evenly spaced for my llung disease, Bronchiectasis, given to deal with a 'bug' that the hospital found in the sputum sample. Also carbocisteine 375mg 3 times a day evenly spaced (oops I forgot my 2nd...just go and have it now...). These really seem to loosen the mucus.

      I would say that it has taken months of antibiotics, and the final sputum test that found the latest culprit, to give me so much relief.

      I still get tired easily (slept this afternoon after a busy morning at church). But I can get on with life in a more limited fashion. I wouldn't say that I expect to get back to normal; bronchiectasis won't let you, but I can manage the condition and work out what I can do in a day and not push these boundaries. Perhaps this is part of the answer? I do hope you have a good week, perhaps analyize your expectations of activities?

      Don't forget to have fun!

      Blessings,

      Lesley

       

  • lynne58044
    lynne58044

    Posted

    Forgot to say I also have  carbocisteine and Azithromycin daily.Yes its important to pace yourself but I have struggled trying to work my hours  18 hours per week  over 3 days. 

    I will speak to my occupational health doctor and than my chest consultant but my chest consultant has always said she is amazed I managed to go back to work even 3 days part time.

    As you say its important to enjoy yourself but work leaves me with no energy

  • lesley05714
    lesley05714 lynne58044

    Posted

    ...6 hours in a day is too much, but having fun is often a state of mind, (see my picture where we sing so heartily,...I sing my heart out...(I actually croak...)

    in my heart I sing, I love to sing!

     

  • GMP
    GMP lynne58044

    Posted

    I have recently been diagnosed with Bronchiectasis. I am still unable carry on with normal day to day activities such as walking short distances without breathlessness, hovering, bending, even making the bed makes me breathless.  Is the going to be forever or will things improve?
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