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hi everyone, well i guess i should start with telling you what i suffer with, Ready.
Lupus, fibermeralgia, Me,sjogrens syndrome,dry eyes and mouth,connective tissue disorder,brittle bones,inflamed voice box , arthritis,my eye site is deteriorating .i get a strong pain on my left side almost where your apendix would be,but the other side and am now suffering with 5 kidney stones on one side and 6 on the other got a pars defect in my spine, and am at the moment suffering with not being able to walk. but i still smile.i guess most of my ailments are caused through the lupus, but not to sure i just take it as it comes. i am on ora morph, fentanine patches and a lot of tablets via mouth . i know thinhgs are hard and some times get me down but i really try not to let it beat me.is there any one else out there who suffers as i do and perhaps if so we could talk and pick each other up and try to understand when it is bad compaired to other times when only a few of the elments get us instead of all of them. my saying in life is smile it confusses the buggers, and i do and it does. but some time ifine it hard when people look at me and say you look so well and really you just dont know where to put your self or how to deal with that days pains. but i refuse to make it some one else's problem.
people who know me know when they look at me that i am bad.my really good friend says come and see me and she wraps me up in her duvet on her sofa we talk and i start slering and making no sense so she knows i am going down hill, that is the worst thing talking and know one understands you, not due to meds , dont know why that happens. once was talking to my husband and i feel aslaap talking to him when i woke up i carried on talking but he was not there, i phoned him and he said that that was 3 hours ago, so yes very mind boggaling some times.
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