im 28 & got irritation since finishing the pill

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Can anyone help? I ended my pill 5 months ago to start a family, a month later (after rough sex) i started with problems passing water and burning in my lady parts which lasted all day everyday not just when toileting. All urine/swabs/ultrasound scans where fine and now 4 months down the line im still struggling. The drs dont know what to do with me and hsve even sugested its all in my mind. Anyway i have been taking 1 anti histamine at night and 2 vit b6 tabs daily (i suffer with anxiety/nerves)  and since then its been alot more barable so i stopped taking for a few days and since then iv felt all tickly inside my vagina and itchy around my bum and some vaginal burning and almost like i have to force my wee out as if the opening is too tight or somethin?? I do have some soreness around the opening to my vagina and between my bum cheeks. Do you think this could be LS? I was basically told to stop harrasing my drs as there is nothing else the can do for me (currently waiting for a urogyneacologist appt at hosp which the w.list is 7months) ... just want some closure and to get on with trying to make babys (which even gentle sex seems to agrivate it. Not used lubricant as was told lubes kill the sperm?!) Any suggestions ? Thanks x

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14 Replies

  • Posted

    Hi Mimi...If I was in your shoes the first thing I would do would be to get a magnified shaving mirror and take a look hard look at my undercarriage.   LS often presents itself with white patchy areas, tiny sores and tiny cuts in and around the vagina.  Waiting 7 months is a long time, and not a good plan if it is LS, and so you really you need to find someone who knows what they are doing, knows what to look for, and so you need to see either a dermatologist or a gynecologist who has experience with this kind of auto immune disorder, because many doctors are not all that well informed with this condition. In the meantime I would use lubrication IMHO until you get a firm diagnosis as you could aggravate the skin or even tear it a little bit I believe...
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  • Posted

    I agree with Guppy. Keep trying to see a gynae who can diagnose you. If you look at LS photos online and look at yourself in the shaving mirror, you can probably see for yourself whether it's likely LS. I diagnosed myself years before I met a gynae who ID'd LS.

    'Yes!" cream is expensive and an excellent lubricant. But if you're very red and sore with white patches, sex will make it worse. We women with LS are 'allergic' to rough sex.

    If you want quick solutions (besides the prescription ointment you need ASAP) try cutting most sugar out of your diet and wear loose cotton pants – not tight or synthetic pants. Spray after bathroom visits with a bottle of water with a smidgen of baking soda in it. Very healing. And don't scratch.

    The good news is that some women here have experienced remission from LS during pregnancy and childbirth – hormones, we think. I've had LS since I was 22 and I had two natural childbirths in my early thirties.

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    • Posted

      Have you or anybody else find that cutting sugar out of your diet has stopped inflammation? That is very hard for to do.
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    • Posted

      I've found that cutting out all the big doses of sugar (not every teaspoon) isn't that hard, because as soon as you do it, the cycle of craving is cut. It wouldn't even occur to me to buy a chocolat bar or an ice cream cone or order more than one small cookie in a restaurant. If I'm at a gathering where women have brought goodies, I'll eat the not-sweet ones and try a small tase of a brownie, etc. It's not a wild diet where you have to read labels to remove every molecule and it pays off very fast in reduced itching.

      Sugar is a widely and long-accepted cause of inflammation, unlike the more recent theories like gluten. I do make an effort to eat less gluten where it's easy, but I'm not worrying about it. It isn't hard to use gluten free pasta and breakfast cereal. But I still eat bread.

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    • Posted

      Thank you! I find myself craving sweets after everytime I eat!!! I am really having a hard time cutting back
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    • Posted

      IF it's not LS, maybe consider the idea that you may be alergic to your husband's sperm. It's a rare thing, but it is a possibility and the more you have contact with somethingh you are allergic to, the worse the allergy can become.  Might be way off base, but it's just a thought. 
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    • Posted

      That is a Good Thought- I noticed that  my husbands sperm burned me  - i put it down to his excessive chilli "habit" hot curries at every opportunity, I am allergic to chilli - my throat closes - And I would sneeze when he came into the room....he is an ex now - but for other reasons
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  • Posted

    Does your urine smell? is it a "different" colour? is it cloudy?- 

    Drink A LOT of water during the day - try drinking cranberry juice  and eat dried cranberries- but as with every thing you do - dont go over board

    The others make excellent points i wont repeat them. - B vitamines WILL make your urine smell differently so stop taking it for a few days - unless your doctor prescribed them,- to check out the smell

    A complex B vitamen is possibly better  than just the 6 anyway

    Vaginal secretions can burn if you are bruised and had swollen inflamed tissue- so that will explain why the burning sensation continued and you feel difficulty in passing urine. A change in your hormone levels having stopped the pill may have made your vagina "drier" than before

    You are still young - dont be impatient to get pregnant, so stop penetrative sex or wearing tapons, for a time - to allow your tissues to heal - if you have continued to "put up" with sex before you have healed, you are not allowing the body to heal itself

    . Babies need calm happy mothers both in utero and  once born, you sound too anxious- try to relax - learn to meditate - and enjoy yourself without worrying 

    Make sure you don't have worms - Do you have any pets? Or have you been stroking any animals? you can have thread worms which will cause the sensation you describe after stopping the anti histamine. Talk to your pharmacist if you think your doctors  feel you are being tiresome - DON'T freak out  at the thought it is very common and very treatable

    Knowing what you normal anatomy is like is very sensible advice

    Take care -worry less if you can - and do ask  any questions - someone will be sure to help answer them

    Best Wishes

     

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    • Posted

      I agree with you regarding parasites being a problem, which people are basically unaware of.  I recently took a small vial of Zentel, which kills any parasite infestation, this is cheap and so easy to do and you can buy it at the pharmacy.  In fact, I think you are supposed to really treat yourself  every six months, I have three dogs and so I am aware of  this, but many people arent..I also gave a vial of this product to every member of my family too...something to think about.
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  • Posted

    Hey.  Not sure if it's LS or not.  Have you checked yourself with a mirror?  Do you notice anything different such as redness, white patches, changes in the arcitecture of the vulva/labia?  Good to get to know what your normal looks like so you can see if there are any changes.  

    The problem with LS is that if you're not diagnosed early, there can be irreversal damage/changes to the vulva.  I was misdiagnosed for months & have perminent changes to my bits.  It sucks.  Go to see your GP, your gyno, dermatologist.  I found that getting super upset with reception helps.  They told me it would be a 4 month wait to see the derm & I told her that I am scared because of major changes to my vulva, I think it's LS & I need to see the doctor immediately.  Suddenly she had an appointment later in the week.  Use correct terminology, make them squirm & take you seriously.

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    • Posted

      I also wanted to point out the part about anxiety.  This condition gets worse with stress & anxiety.  Best to learn to relax, breathe deeply & slowly, meditate to allow yourself to heal.

      There is a lubricating product called pre-seed that is designed to relax the cervix, lubricate & doesn't kill sperm.  I have used this while trying to conceive & have gotten pregnant 2 times.

      Take care of the nerves, look at your vulva, use the proper terms when discussing with doctors, take it easy.  

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    • Posted

      Good advice!...You cannot be polite and keep a stiff upper lip when your dealing with Lichen Schlerosus...
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  • Posted

    TFoods to eat if you want to reduce inflammation Flax seeds Pumpkin seeds walnuts   fruit and vegetables: eg carrots, kale,strawberries, squash mango figs pinach blueberries and mango

    Foods to avoid Fatty red meats dairy products processed foods refined sugars, nightshade vegetables:-potatoes peppers tomatoes

    I am sure there are others on this site who will be able to give better information about diet, as Morrell said eat sensibly and DO NOT stress about foods you eat. Stress itself will exacerbate most areas of  ill health; the fight or flight hormone, cortisol, damages many cells and tissues in the body and nervous system. So when you get upset nervous anxious angry this chemical is produced and if you are not" fleeing" it stays in the body and further damages the unhealthy parts. So Mimi do what you can to reduce stress in your life. Can you go to a gym, take up running swimming - any exercise - routinely everyday This has a double effect- by keeping you fit and increasing the GOOD hormones - endorphines - that make you feel great

    If you can afford to have a private appointment if making a fuss doesnt work this will also shorten your wait for an appointment. Write to your local councillors  and your MP if you think your wait is excessive- and let them feel your pain

    Are you in the UK or elsewhere in the world? take care

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  • Posted

    Thankyou all for ur comments. Yes im in the uk, i wanted to see a gyne who also specialises in urology too hence my long wait sad i have had a look down there anf cant see any white blotches but red and almost shiney bits of dry skin maybe like scarring. I have tried cranberry & barley water & they do seem to ease it slightly but if i go a few days w/o it just comes bk again. I have noticed that my wee smells strong but nothing else. I will look into this paracite med too. I used to be a drs receptionist so i find it hard to be difficult or harsh towards them (as iv been in their place lol) i might just try getting a telephone consultation and then its upto the dr to offer me to go in n see them. I am eager to start a family but think wev only had very gentle sex maybe 3 times since all this started so cant see me catchin anytime soon lol but it will happen wen the time is right. Thankyou for all ur comments x
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