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Im about to start Acterma worried about side effects.

Posted , 6 users are following.

rosalind86239
rosalind86239

Ive already have had Enbrel, Remicade, Orencia, Xljanz and Methotrexate with side effects that cause me to stop. Im so tired and discouraged and in so much pain. please give me suggestions

0 likes, 7 replies

7 Replies

  • tony35673
    tony35673 rosalind86239

    Posted

    I've tried most of the meds all to no avail, I now rely on tramadol, ibuprofen, paracetamol, and hot and cold packs.   I'll be starteing a new biologic soon, no doubt that won't work either.   I've had some side effects, diahrea, nausea, thin skin, bleeding.   All the RA meds have side effects and the side effects are almost the same for most of them.   If they don't agree with, stop them, but you have to make a decision before you do:   are the side effects worse than the condition?

    • bob_2020
      bob_2020 tony35673

      Posted

      Ok tony have u came of mtx as well and do u not take any drugs for RA Now i take tramadol as well still on 25mg mtx am fine with mtx been on it few yrs now...waiting to start Tocilizumab tried cimiza before the biologic drugs seems to give me some side effects am in alot of pain tony mate its went everywhere kinda weary of starting this drug but dont have much opition have u tried Tocilizumab tend to agree with u tony the strong painkillers can do a job 👍👍

    • tony35673
      tony35673 bob_2020

      Posted

      I'm relatively new to this disease, 18 months ago I experienced excruciating pain in my forearms, saw the GP who thought it PMR and prescribed prednisone - still trying to taper down.   three months later I saw a Rheumatologist and was diagnosed with RA, on the last visit he changed the diagnosis to PA.   Since being diagnosed I tried MTX, sulphasalazine, hydroxychloroquine, leflunomide, cimzia, arava and now just starting cosentyx - maximum dose.   for pain relief I take two tramadol a day with either ibuprofen or paracetamol or both, plus short acting tramadol when needed.   I've found ibuprofen the best for pain relief by far; but, ibuprofen is not good for the heart, liver and so on, so I only take it when the pain is unbearable.   The RA/PA now affects my left ring finger and thumb, right thumb, index and ring finger, wrists, forearms, elbows, upper arms, shoulders, neck, lower back, left big toe and balls of both feet.   Oh happy days!

    • rosalind86239
      rosalind86239 tony35673

      Posted

      Good day, thank you for responding. what is Tramadol? My fear is cancer side effects which they all seem to lead to or at least address that possibility. Cancer has recently become more in my family . Had my first infusion one week ago which of course did not give immediate relief like former ones so we will see. meanwhile back on the nasty predsidone and oxycondone until it gets into my system
  • patricia82863
    patricia82863 rosalind86239

    Posted

    I have RA and use methotrexate sulfasaline and another drug something quite can't remember it's name, I also have cervical stenous mylopathy had an operation 2 years ago through the front of my knock as I couldn't walk ...they done the operation in the front right hand side of my knock the symptoms got a bit better after opening but now my left side is the worst but doctor says they don't want to operate on the left side of my knock at the back as they don't want to undo what they done on the front of my knock (put metal plate and screws in )...so I'm still in a lot of pain and depressed on a lot of Medstead including morphine 40 gram in morning and 40 at nt and taking sevrodol in between just feel like ending it all as I can't cope anymore ,they have gave me leg brakes and special shoes to help me walk oh I just wish it would all still xxx

  • Rowbirdie
    Rowbirdie rosalind86239

    Posted

    Hi Rosalind

    you may by now have had your first infusion of  Actemra ( brand name for the drug tocilizumab) I had it for a few months but was switched to rituximab because I have a lung problem too- not because of side effects,

    i just want you to know it works in an entirely different way to Enbrel and othe anti tnf s. Look it up on arthritis research web site. It affects a different part of the cell , tackling auto immune response

    And yes- you ll see a list of possible side effects. If possible ignore them and believe for the best as its not just another version of what you ve already had.

    if this biologic works for you it will have such a good effect.

    all the best. Let us know how it goes

     

    • rosalind86239
      rosalind86239 Rowbirdie

      Posted

      Thank you for this information. I had my first infusion a week ago and of course no immediate relief. I have to resort to predsidone yet again and oxycoden both of which I hate relying on.  The flare

      s continue and I also have Fibromyalgia to drag along.  I'm hopeful this will work.  Do RA folks ever go into remission? I just keep researching and chatting with others like yourself. thank you👍🏾

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