im in pain all the time.

Hi Barbara, what you are experiencing may not last as fibromyalgia changes all the time. You need stronger painkillers such as tramadol or dihydrocodeine to take at bedtime so please make an appointment with your doctor to discuss your pain levels and medication. There are lots of helpful discussions on here under various headings so have a search around. Don't despair as there is hope. I have had periods where I have been unable to turn over in bed without crying out aloud either due to pain in my back or hips and walking has been difficult too. Now I am back to exercising and walking with my dogs. I am still in pain every day but I accept that it is now part of who I am. I know that if I have a flare, it will not last but I know how disheartening it can be.

Caroline

Hi Barbara

Unfortunately, Fibro pains come and go and it can be very disruptive in our lives. Staying calm and positive and focusing on your breathing is the key thing as well as looking at your diet. Cognitive Behaviour Therapy (CBT) can help with the mindfulness of your thought process.  Ask your GP for a referral.

You will get plenty of support on this forum.

Gentle hugs and take care  x

Hi Barbara;  I'm terribly sorry that you have been given your diagnosis, as this is a very debilliataing condition, and as you will hear from many, we have all been through what you are going through now.(and have hated it too..it knocks at our inner selves so very much)...   My first advice is to ask to be (actually insist) referred to a very good Rhuematologist, who knows and understands Fibro....secondly, I know Advil won't touch you....as many others on here know, and need to use much stronger medications.  You will need to try (and this is always a trial and error) something like Amitriptylline..starting with about 10 - 30 mgs...some of us take a litttle (me 10mgms during the day, and another 25mgms at night).....this works on our pain and emotions.....I also take Gabapentin, which is also a Nerve Pathway Blocker (400 mgms to start with daily..also helps with the restful sleep)...there is a lot more information that you can learn from everyone on this forum ....even trying Epson Salts Baths...to use of vitamins etc (Magnesium tabs for muscle pain/spasm)....try researching  on all sights re Fibromyalgia, the treatments, and find specialists who know re Fibro, and are prepared to help.....can I ask what company you live in, as the treatment can be different in all countries, as I have found from this forum?  Hoping  that I have not rambled on too much, as at moment I feel "Fibro Fogged"...have been trying to answer 2 other phone calls in between typing this  (best check what I've written???)   You do have my thoughts and feel for you at this very hard time....and will be waiting to hear back from you.....Bron

Hai  Barbara,  You will still be in a state of disbelief this early after diagnosis. Give yourself time to adjust and understand what fibro means for you. It is different for all of us and we all eventually find our own way of dealing with it.  Sleep deprivation is awful and one can understand why it was used as torture!  If your hips hurt try sleeping with a pillow between your legs - it works to some degree for me.  I was told I had fibro by rheumatologist who just wrote the word on a piece of paper handed it to me and said "go and do your own research".  Is it surprising that most people get depressed after diagnosis - of course not. Be kind to yourself. I took my diagnosis by the horns and sought alternative therapies and decided if the NHS wouldn't help I would have to help myself. I am not saying it is easy because it's not but hopefully as you begin to understand what fibro means for you it will get easier. I keep a diary to see how food/exercise/stress affects me to try and work out if there is a pattern. Perhaps a referral to a pain clinic may help. Keep your chin up and remember the folk on here will always understand and reply if you need to vent frustrations or just ask a question.

Oh bless you barbara loads of hugs coming your way x The pain is the hardest thing to cope with last night I was up all night in pain with my leg. I took ibuprofen stuck ahot water bottle on it ibuprofen took the edge off it a bit. but the hot water bottle helped alot. Have you tried claiming pip hun, I was a carer but had to give up my job as I could no longer do it. I can understand you being depressed its understandable with our condition. I suffer with depression also its no fun having fibro here for you take care.thinking of you remember your not alone we are all in this togeather.

Hi Barbara, I have had osteoarthritis, fibromyalgia, depression and sarcoidosis for many years. Sadly, pain is chronic but keeping your spirits up and diet balanced is key. I work full time in the NHS as a drug safety scientist in clinical research and have to drive a 60 mile round trip to and from work daily. I asked to be put on a drug called Cymbalta (duloxetine). This is a SSRI and SNRI and works as an antidepressant. It is also licenced for neuropathic pain and has helped me a lot. On good days, I need no other pain relief. I am having a bad patch currently, which is made worse by sleeping when I get in from work (messing up my sleep cycle), lack of exercise and life being stressful. I would stress that it is important to keep going as much as you can, don't give in to it. You will have reasonable patches - make the most of them and put yourself first. My adult daughters live with me and are lazy, unhelpful, messy and unsupportive. So now I look after No. 1! I sometimes think this is a disease of helpful people. Others just use you up!

I too have been diagnosed with Sarcoidosis for the past 16 years.  I am in pain 24/7 and ​unfortunately I had to go on pain meds. I cannnot take aspirin, they tried a nuero medication on me, and that did not work.  I was on predisone, chemo, mylaria drug, none of it worked, and the pain persisted.  I have Sarcoid in my lymph nodes, which is in my bones, and very painful.  Now, my health insurance will no longer pay for my pain meds, and I cannot afford to spent $890.00 per month on 1 medication.  I am so sorry to hear you suffer too.  Is there any way you can get disability?  Do hot baths help? It sounds like you need medication, but I hate to say that.  I have not found anything that really helps, and I too can;t sleep from the pain. 

 

Barbara, try amitriptyline, I take it for Sarcoisosis, but it can help with depression and pain, I take 50 mg at night because I can not stay asleep from the pain. Good diet, less stress, mild exercise, and lots of rest.  Easier said than done. It will not cure, but it helps. Also pain meds.  I feel so bad for you, as that is how I feel every morning. Just wish people would be more understanding. Take Care.

 

Hi Barbara.

I'm really sorry to hear that. I feel your pain, I'm 21 and had this horrid condition for over 3 years.

It is awful. I have forgotten what it's like to go a day without pain, and I haven't had a good night's sleep in God knows how long.

The pain in my legs is unbearable, literally feels like they should be detached. And I get this sharp shooting pain. I feel like I'd be better off without them, I am sure my knees are deteriorating.

I struggle to walk and my Legs often givery way underneath me. During the night I toss and turn a lot. And I have restless leg syndrome. I can never get comfortable. I wake up in agony, and often we up crying in pain.

I do hope we all find a way through this. And that we will find a cure to this awful condition.

Take care x