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Im in serious need of help as i am confused.

Posted , 3 users are following.

johndiggle
johndiggle

Hello Guys,

3 months ago i've had symptoms that i got rid of for a while then got back and then off a while i thought at first it was acid reflux but it wasn't as i have done the endoscopy and no GERD or acid reflux showed up.

But it seems i have esophagitis but without acid reflux.. My throat seems to have yellowish white lines on the back of it, sometimes especially after eating i find it hard to swallow but no pain at all, seems to also have mucus there sometimes, i cough sometimes for no reason at all.. probiotic seemed to help when i tried them when i got off them it got worse but now again im at it again for 4 days but sometimes i get the symptoms in a severe way.. can anyone let me know what is it i am experiencing? The symptoms are below

1) difficulty swallowing sometimes ( after eating mostly ) 

2) Yellowish to white lines on the back of my throat ( at first when the pharmacist checked them she said its acid reflux but i checked the endoscopy but wasn't that ) i still have that yellowish line for over 3 months now.

3) Coughing for no reason at some points

4) sometimes feels like i need to take deep breath ( shorten in breath )

5) i sometimes lose appetite and don't eat much therefore i lost weight ( 2k)

6) abdominal pain sometimes

7) diahrrea or constipation ( it varies )

8) hypersalivation

What i noticed but not sure if it is true or related

1) laying on my back or on my left side seems to help and relief me from my symptoms

2) standing up and walking sometimes seem to help too

3) belching seems to also help

4) I noticed severe symptoms right after eating chilly stuff, however that does not happen if i eat anything else such as pepsi, cola, cheese, lemon, orange, pineapple etc.. ( thats why i also made sure its not acid reflux because these doesn't bother my stomach neither chocolate )

Thank you in advance

1 like, 5 replies

5 Replies

  • robodelfy
    robodelfy johndiggle

    Posted

    Hi john

    I have some red spots on the back of my throat, obvious irritation, that gets worse when I talk. Other than that I get a tight throat and globus sensation. But recently I have experimented with food and notice nothing when I eat the most acid producing food!  So I am leaning away from the reflux idea.

    Other thanthat Im afraid I cant relate to your symptoms. I hope you manage to find a way to get help, its so confusing having problems that no specialists or doctors understand

    • johndiggle
      johndiggle robodelfy

      Posted

      Exactly i know what u feel, i think it is something related to my oesophage since ive made a scope from nose to throat and he said it is acid reflux but it wasn't that and i confirmed it via endoscopy im thinking to go again by him and let him check me again.

  • norma04599
    norma04599 johndiggle

    Posted

    Hi, I attended a Celiac presentation by a gastro specialist (my husband is the Celiac, I am the reflux sufferer!). The specialist listed signs of Celiac disease and one of them was esophagitis. It's worth getting investigated. Don't go off gluten before getting checked. Ask your specialist did they biopsy for Celiac when they did the Endoscope. Hope you find the answers and get back to feeling as well as possible.

    • johndiggle
      johndiggle norma04599

      Posted

      The thing is im not sure if it is about celiac, as in allergy to that because i checked the symptoms, i do not have them except one thing with is abdominal pain and bloating and these are common for some other stuff, besides i do not have any other symtpoms.

      I however noticed something that my bowel movement is linked to my symptoms, whenever i have dihareaa or constipation i get them but when my bowel movement is fine its all good, and probiotic seemed to help me once i took them first but now im taking again as i stopped 2 weeks and symptoms got back.

      Could my symptoms i listed above be linked to my intestine?

  • norma04599
    norma04599 johndiggle

    Posted

    Hi, yep you are right - there are a lot of things it could be - eg. FODMAP my sister in law was tested for Celiac as there are more than my husband in that side of the family with it and she thought that she must have been as she had bloating and constipation - her Endoscope proved negative and the doc put her on a low FODMAP diet which seems to have helped. Celiac disease is an autoimmune disease not an allergy Another variation is that some people are sensitive to gluten and they have similar symptoms. So it's  a process of elimination for a lot of sufferers.

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