im scared nobody to talk to :( achalasia
Posted , 10 users are following.
im 21years boy who has achalasia.i had a bad experience! i cant eat properly and everytime when i sleep i keep coughing and vomit when i fall asleep.heartburn.when i drink n eat i vomit.i was very worried ...i did 2times baloon dilatitions that only last for 3 4 weeks than the simptom come back...finally i decide to do the the keyhole surgery last 3month.after i did the surgery i feel much better and the most happies person in the world because i can eat n drink properly....but after 5weeks i start vomit when i drink or eat not everytime...sometimes there is a foam coming out from my mouth..izit reflux? but the simptom is coming back.i lost lots of weight almost 14kg...and im worried there is no cure for achalasia ...i scared that im gonna die young.i dont want to go out i dont want to talk to any1...i feel down and i always think how long im gonna survive if i keep vomit evrytime i eat and drink....i feel sometime i dont want to see the doctor anymore.i lose hope....i keep crying alone in the rooms. because nobody to talk to..this sickness change my life alotttt!only god know! pls help me some advise....should i see the doctor and do the endoscopy again or should i change my diet?
1 like, 16 replies
AlanJM
Posted
I think that you ought to talk with the specialist nurse or the surgeon's secretary at the place where you had the surgery done. It can be something that happens a while after this surgery, but tell them about it and they will give you the right information, especially if there is something specific that is making you vomit.
Achalasia is connected with the nerves and the way that they operate in taking your food down to your stomach, so if you can relax and avoid stress, this often helps. I know that this is easier said than done!
Some people do manage their condition quite well, indefinitely, but there is sometimes a process of fine tuning to make sure that the diagnosis and surgery / therapy has been adjusted and fine-tuned, so it does take quite a lot of patience, and it is natural to become frustrated. It is also worthwhile persevering to get it done right when you are young.
You might like to talk to Dawn on the OPA helpline on 0121 704 9860.