Im so depressed, please help...Possible vulva lichen/dystrophy?

Posted , 15 users are following.

I dont even know where to start. it was the beginning of july of this year, when i felt a terrible burning on my vaginal entrance, I went to my family doctor and she said she only saw a bit of discharge that didnt even look that bad. She gave me a single dose pill for fungal infection and sent me home. The following week i kept getting the burning sensation,so I went back 2 weeks later and had a swab exam done which revealed an overgrowth of Staphylococcus epidermidis. but during the time i didnt manage to get an appointment, i tried at home remedies with this powder solution, made as a desinfectant for vaginal infections. I admit prior to this i had used some vinegar on my vulva in an attempt to remove vestibular papillomatosis overgrowth that was bothering me, but i dont know how it is influencing this,over 3 months after. i did get 2 spots on my vaginal introitus/vestibule that are red and raw and still havent healed, i cant help wonder if my doctor had seen them before or if they appeared after from the vinegar,but they should have healed anyways,since its been so long and my doctor upon seeing them sent me home with a healing cream called cicalfate that is basically made of emolients such as zinc oxide. the red areas are now developing white spots and i dont know if it is a sign of healing or not. all i know is that i have to use this cream everyday on my vulva because it burns so much. even wearing pants and sitting for too long is painful. My doctor and my parents think all of this is from taking the antibiotic for the infection (flagyl). but its been almost 2 months after taking it and the red areas where probably there before. and what makes me think i have something else besides just possible chemical burns or irritation is these new areas that ive spotted a couple of days ago upon applying the cream (i use a mirror to do it). they are whitish but not too obvious,they feel smooth and look a bit shiny. they dont itch,but on the right labia minora they look the worst. there is a part in specific that worries me alot. the corner, closer to the urethra, ( as you will see in the photos) feels like its "pulling"some sort of scarring happening that makes it feel and look different when i try to spread that side open. i dont know whatelse to do. i went to gyno ( last week,before even noticing the white spots) and she barely looked at me,she said it was a fungus due to the antibiotics and gave me fluconazole ( 2 pills) and a cream that has hydrocortisone and miconazole that was to be applied for a week. I used it and it burnt so much with no improvement, i assume its because the red areas are wounds not just redness underneath the skin. I dont know what to do. Im 21 and a broke college student,my family is overprotective and has been going and paying for these appointments,but they have now given up. they say its just a side effect from the antibiotic and believe its all in my head. im going in to my family doctor again in 2 days and i already know she will take a 3 second look at me and ignore what im going through. i just want a diagnosis and proper treatment. I feel ignored and alone. im so scared. They all see me as crazy because i have anxiety and depression. I have no money,and after going to the family doctor again and getting another no, what am i supposed to do? Ive heard of a vulvoscopy,but in my country i cant seem to find it in my city and it looks like they require a doctor's request. I need help,please answer me.

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  • Posted

    photos from tonight

    ive even tried coconut oil since it dries up so much it look like it could flake away. the pulling is getting really bad and the pale areas are still shiny. even the skin of my urethra is shiny ( but still pink)

    it burns even when i touch the areas.image

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    • Posted

      update: i payed for a vulva swab on the areas that are bad. not the same as a biopsy or a vulvoscopy but for me to be able to do those exams i would need my Family doctor to order them for me. The swab really hurt specially on the red areas. This will test for skin infections or cell alterations.

    • Posted

      It was cheap so i could afford it...

    • Posted

      Im still waiting for the exam's results, im not even sure if swabbing the red areas managed to collect cells to test... im praying it did, and that it will tell me what is going on. when i get the results i will update this

  • Posted

    update: vulva cytology swab results I got the results yesterday and it came out as

    Atypical squamous cells of undetermined significance (ASCUS)

    I had the hpv vaccine and never had intercourse... so now i have no idea what to do... i cant order a biopsy by myself, my Family doctor would have to order it. My only hope is that she doesnt dismiss me again and looks into this. The red areas are still there, it still burns...

  • Posted

    The family doctor won't help you because he does not specialize in this disease. Judging by the photograph, this is really lichen planus. I have the same. I tried unsuccessfully to understand what was wrong with me, and only recently I've been given this diagnosis. Now I'm 23. Try to calm down, lubricate it with coconut oil. If you go to the doctor, than only to the one who specializes in this particular disease, otherwise it’s a waste of money. To alleviate the symptoms I have low-frequency ultrasonic cavitation, they do it in Moscow.

    • Posted

      did you have these red patches too? I have posted something similar and I am terrified, its causing burning pain and it has got a lot worse since taking antibiotics

  • Posted

    Cat, forgive me if I am stating the obvious but are you moisturising regularly? The skin in your photos looks very dry. Coconut oil, cetraben ointment, even vaseline could help. They can act as barrier to urine irritation as well as soothing the skin. And maybe use something like epaderm ointment to wash with and dont rinse it off too much?

    I never let my vulva dry out since having LS and it helps.

    I really hope you get relief soon and a proper diagnosis.

  • Edited

    This looks exactly like my symptoms! Did you find out what it was?

    • Posted

      Hey,I was told to come off gluten and dairy for at least 3 months.

      Gyno gave me a hidrating cream and said the one with zinc oxide was just making it worse. Was also given antihistamines.

      The redness calmed down a bit but it's still there. Was told it could be vulvodynia and therefore will take some effort to go away (if it ever does). Maybe try these things that I'm doing as well? All the best

    • Edited

      Hi Cat,

      Thank you for the reply and the advice. I thought perhaps vulvodynia too. I am only young like yourself so it is so frustrating!

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