1. Community
  2. Bones, joints and muscles
  3. Fibromyalgia Syndrome

im so miserble and no one will help

Posted , 5 users are following.

connie6821
connie6821

For the past three years, I have had the worst possible pains in my knees, feet hands, spine and shoulders. I discovered over a year ago that I had fibromyalgia, over this time my GP has done nothing to help, and I don’t know what to do. It has got to the point where the pain is what I consider normal. I’m only 18, and I feel as if I’m not living my life because of this, recently I went to the hospital due to the pain being so bad, and they ran a few tests. The results said that I have symptoms of arthritis. I honestly just don’t know what do anymore, every time I see my doctor it's as if I’m not a priority, and I’m irritating and it stressing me out. I just want to be healthy, and he won't help me.

what should i do?

 

 

0 likes, 4 replies

4 Replies

  • Hollymayshipton
    Hollymayshipton connie6821

    Posted

    Hi Connie, I am 21 but feel about 80 and feel your frustration. I have a variety of symptoms that I can finally understand as i have been diagnosed with fibro. I was getting no where with GP's until I asked to be referred to a rhumatologist. When I finally got an appointment he did some tests and confirmed I had fibro and put me on medication straight away which does help. He may also suggest to put you on anti depressants as i have found they help with the low feelings and can even ease the pain as we know that stress and worry can make our symptoms worse. Good luck !
  • Bee70
    Bee70 connie6821

    Posted

    Hi Connie

    You are not alone here.  Doctors unfortunately aren't very helpful with the diagnosis of Fibro.  My pains started when I was 23 and was told it is R.S.I. and then was told it coud be carpal tunnel, then to be told it could be signs of arthiritus. Years went by with no proper and final diagnosis was I had chronic pain. I am now 45 and was only diagnosed last Aug 2014 from my rheumatologist that I had Fibro.

    Dealing with is can be frustrating but over the years I have found medication didn't work for me and I felt depressed and had very low self esteem.  As I have had years of pain I have come to terms with it and with the help of CBT (Cognitive Behaviour Therapy) I have become mindful in my thinking and have become more positive and I am able to deal with a day at a time.  Maybe you should ask your GP to refer you to these sessions.

    Please don't be sad and live for the moment and stay positive. I understand at times being positive can be a challenge but it's the way forward.

    Gentle hugs and take care biggrin x

  • leona18728
    leona18728 connie6821

    Posted

    Hi Connie,

    I'm so sorry your feeling so so unwell and feel your not being listened to,

    It can be very difficult to get diognosed with fibromyalgia in the first place so at least you have got a diagnosis which is a good start,

    You are very young, Do you have a supportive family friends etc ?

    Has your GP refereed you to see a rhumatologist yet If not ask him to be as this is important as they specialise in fibro and not all GP's are in agreement that fibro exists

    If you have lost faith in him you might want to change your GP it's your right to do so if your not confident in the one you have,

    Are you on medication for fibro, what was the outcome of having arthritis

    You are among friends on here and we support each other best we can,

    Thoughts are with you

    Gentle hugs being sent

  • tiswas24537
    tiswas24537 connie6821

    Posted

    welcome to the club of suffering in silance becasue most medical people dont know about it or if they do a lot think its all in your head .

    and if have you friends most think your moaning about nothing and they soon get fed up .

    sorry to sound so negative hun but thats just how i feel i went to get blood tests and the band round my arm was left on longer then normal because she couldnt get any blood , i was in agoney near to tears with the pain .and she thought i was making a fuss .

    once again the feeling of dispeare came over me .her attiude changed when i told her i had fibro she didnt know what it was but when i said its like ME but we tend to have more pain then fatigue ,her attidude changed for the better  because she knew some one with ME . 

    i am so sick of people  not knowing about fibro and treating us like we are just moaning about nothing .its hard enough to live with, with out others makeing it harder .treating us with dis respect .

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.