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Im trying to find out if UC turns into Crohns after colonectomy?

Posted , 4 users are following.

mzmcgee1231
mzmcgee1231

I was told by a surgeon that theres a 5% chance i can develop crohns after a coloectomy....has anyone ever heard of this?????please help

0 likes, 6 replies

6 Replies

  • JonWHut
    JonWHut mzmcgee1231

    Posted

    Hello,

    i have UC, had colon removed and now suffer from proctitis.

    My specialist told me that if the rectal stump is removed there's a chance that it can manifest its self somewhere else in the body such as the liver etc, although I've not found much information on this anywhere. 

    Sounds a little similar...

     

    • sheila91262
      sheila91262 JonWHut

      Posted

      Hi Jon, they suggest you have the rectal stump removed whether you have a reversal or not as it is more likely to get cancer statistically. My son had his stump removed during his J pouch surgery as it was producing mucous and discharge and he had to treat with Asacol, was glad to see the back of it!!! Wasn't needed for J pouch function, still has anus and rectal muscles which function well to contol his output.

      Sheila

  • sheila91262
    sheila91262 mzmcgee1231

    Posted

    Hi, I haven't heard anyone mention it, and some people on here have had an ileostomy or internal pouch ages ago and haven't said anything. Have you contacted the charity ( Crohn's & Colitis) and asked them. My son has had the ileostomy 2 years ago and internal pouch since July and has no symptoms. Long may that continue. Good Luck, Sheila.
    • mzmcgee1231
      mzmcgee1231 sheila91262

      Posted

      No i haven't contacted them but i be sure to call them..thanks for letting me know that....i haven't heard of this before myself...but im really leaning to the surgery... tired of all the blood loss an then doctors want to experiment with different medicines...id rather the surgery lol
    • sheila91262
      sheila91262 mzmcgee1231

      Posted

      I think we have spoken before, we are 2 years down the line now and all good. He had ileostomy and then reversal with internal J pouch and worked very well. Would recommend John Radcliffe Hosp Oxford as the best in the World, Prof Mortenson is caring and so experienced. St Marks London is brill too.

      Do remember DVT is a risk after surgery as UC sufferers have thicker blood as part of disease, they will prescribe blood thinners to avoid. My son was not treated carefully enough as he wasn't sent home with anti coagulents so developed a large DVT which complicated his medical history, but OK now. My son considered the colon removal to be the last resort but life was much easier afterwards, much less disease and symptoms and no pain and urgency and very little in the way of meds. He ate himslf fit and exercised to regain the 3 stone he lost because of his severe flares and felt almost as good as new. Good Luck to all.

      Ask anything you like, it's good to share.

      sheila

       

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