im worried it might be leading to arthritis

Posted , 2 users are following.

Hi I was diagnosed with Perthes Disease when I was 8 I had a few weeks of traction when the pain was bad and a wheel chair and crutches if I was going out. After a good few years I was discharged from the hospital this means no more check ups but they said if I had pain I should come back. I am now 19 and over the past year I have noticed the pain coming back if I do some thing to irritate it. last week I got in touch with the doctors as the pain had got worse I am now worried that it may be arthritis setting in as I am only 19 this worries me. Has any body else been a Perthes Disease sufferer and developed pains so many years later pleas share experiences. :?

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  • Posted

    yeah ive had the same problem i was 5 when i was diagnosed and everything has been fine apart from in the winters it gets a bit painful, but i am now 18 and recently the pain has gotten much worse i'm not sure why i really hope it isnt anything to do with arthuritus
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  • Posted

    Hello!

    It is so good to find someone that has/had the same problem - even though you are at the other part of Europe!

    I have had Perthes disease from 7 till 11. I was going about

    on crutches for 3,5 years, I had an operation (to correct the position and growth of femoral head).

    After the disease I walked, run and dance normally with almost no problem. The first pain came a few years ago, so I went to a doctor. She told me that I am going to have an arthritis in 10 or 15 years. Not a got information, but as I read on internet, she was right.

    \"The main concern is that the femoral head may not reform properly, so that 'flattening' of the femoral head can occur in some cases. In this situation a permanent change in the joint may remain. This can cause permanent stiffness of the hip joint. It can also cause arthritis of the hip joint at an earlier age than usual, for example, at around age 40.\"

    (patient.info/showdoc/27000664/)

    I have a strong pain for three weeks right now and I am waiting for an orhoped to tell me, what is going on with my hip. I am now 27 years old and I would really like to know if it is the time to go for an operation and if there is any complications with having a baby.

    I am going to wait right now and would be very happy, if there is someone that is older and had an experiance with Perthes Disease.

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  • Posted

    hi

    i am 38 and i had perths as a child , i had a steel plate and pins fitted to my hip for 2 years then they were removed . i have lived a virtually pain free and active life up untill 8 months ago , i started geting pain in my hip so bad that i couldnt stand up on some days ,i visited my doctor and had x rays on my hip and he sent me to physio were i was taught a few exersises to build up the muscle around my hip the results have been great i have just started to play football again last week and will be starting back at the gym this friday,i think that as you are still young it

    might not be arthritis ,it could be that you need to try and keep your hip moving by swimming ,walking or cycling, i hope you can have the same result as me because i know the pain you feel

    good luck frank

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  • Posted

    I'm a 54 year old female who had perthes diagnosed at age 4. I spent almost 2 years in hospital as a child, the first three months in traction, followed by numerous changes of plaster casts, when discharged home to the care of my family, I had to wear a caliper on the affected leg and a built up rocker on the other foot for around 8-10 months.

    I've always had slight stiffness in my hips, but recently have developed pretty bad pain and lack of movement, just had x-rays taken yesterday and am awaiting the results, praying that it isn't arthritis setting in, but at 54, I guess it may be.

    It's great to have found this website, at last there are others around who have heard of this, usually I just get funny looks from those who haven't heard of it before! I hope you aren't developing arthritis yet, and there is another and treatable reason for your symptoms, best of luck!

    :?

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  • Posted

    Hiya.

    Diagnosed with Perthes when I was 11 - [i:996b5f7712]very[/i:996b5f7712] late, and was told that if diagnosed much later than 7 or 8 the prognosis was 100% for osteoarthritis and a hip replacement in middle age. Had an op and told to get on with it.

    Am now 46. Today I went on a 25 mile bike ride through the New Forest, most of it (it seemed!) uphill. At the end of it, the hip was fine, despite a major OA flare up last year that had me seeing my GP about it for only the second time since my original op.

    I've had all sorts of trouble with the hip over the past 30 years - pain, restricted movement, the gradual shrinkage of possible activities - and I may be due to go under the knife within the next few years. I genuinely can't remember whether I had much trouble with it in my late teens but I know it was playing up in my twenties. But one gets on with it. From your perspective that last statement probably sucks, but if you've been dealt a bad hand there's little else you can do.

    The secret is biking. Get a bike, if you don't have one already, and [b:996b5f7712]use[/b:996b5f7712] it. IMS cycling and swimming are pretty much the only exercises that are good for our condition and it makes sense to indulge in both. I only cycle (you don't want to see me in speedos); my GP reckons this has done enormous good in staving off the hip replacement that I know is coming.

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  • Posted

    :D i was diagnosed with perthes when i was 5 i am now nearly 27 and i have been in really bad pain for the past few years.
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