Imbalance while standing and walking

Hello Chandra yes I experience the same symptoms but my specialist give me some exercise to day I had another ear perfusion in April of 2017 but nothing is helping I fall I have been dealing with this since 2008 the tinnitus is terrible hope you get to feeling better your not alone

Hi I've had Menieres now for 5 years. My symptoms are very similar to yours. I'm worst while walking and moving my head at the same time like crossing roads. All treatment I've had has now been exhausted and my consultant says there's nothing more they can try. The worst of my vertigo attacks were in the first 6 months and i was having 2 to 3 a week with 2 drop attacks which were the worst! I was really bad after a treatment I had just over a year ago. My tinnitus is bad but my hearing aid helps in the daytime. I feel lucky when I read other people's story's..

i have exactly the same issues as you and it seems that there is no solution. We just have to live with it.

I take medication for high blood pressure, have pernicious anaemia for which I have 3 monthly injections, have had two hip replacements and am awaiting knee replacements, from which I am in a lot of pain on walking but all can be managed but MENIERES has ruined my life. I cannot go out on my own for fear of spinning and toppling over and carry sick bags in case!

Betahistine and stemetil sometimes work but not always.i used to walk a lot for exercise but now can't even take the dog out!

Yes. I have the exact same symptoms. I have had menieres for 4.5 years. It started with tinnitus and then vertigo attacks (with heavy vomiting and sweats). I got attacks every 4-6 months, but also sometimes had 3 in a month. After the 3rd year, I then started having the everyday imbalance. walking down hallways or grocery stores was very difficult. Nothing would make it better. Then, I read about how the best treatment for imbalance is jogging. I first thought that jogging would be impossible bc I was too dizzy....BUT....let me tell you, its been 4 months of slow jogging (almost really just a shuffle) and I am feeling soooo much less dizzy. I am able to drive easier, walk easier, and dont have that feeling of imbalance nearly as bad anymore. I have also not had a vertigo attack in 7 months. It's my longest stretch ever!I also maintain a low sodium diet, very little alcohol, and no fast food.

hi sorry to hear how you are feeling mine started in 2017 the same as you it is the most horrible feeling ever it feels like we are losing control over are body i am going to tell you the feeling does not go way but we learn to cope with it the supermarket is the same for me all the ailes seems to came on top of me if i turn to quick then it starts to move standing or walking its like we are on a boat the swaying movement even at home too try not to stress it makes it worse iam on tablets to help the swaying it called BETAHISTINE 16MG THREE TIMES A DAY you can take less or more ask your GP about them there have really helped me i still under the E N T dept it has given me the ringing in the ears too some time to loud and i cant watch anything on tv or out about with moving lines zizg zazgs my eyes cant handle all this now it to much and make me want to be sick please talk again if i can help in any way but my has been going on for some time i did not know what was happing to me jerking head movements too blurred eyes if i moved forward then i could not stop myself falling all together my words come out jumbled to sorry if all this sounds too much i dont want you to think you are the only one going through this take care if anything else i can help you with let me know take care we are all out here for you

sorry to hear that. i can relate. i have had 3 strokes and ever since ive had vertigo and really bad tinitus.

you never know when it comes on but when it does i cant walk and havexto take medication and go to bed.

for me i know when my blood pressure goes up quickly the vertigo hits. ive changed my blood pressure meds and has finally been under control. i havent had vertigo since july and been so lucky. you have to be proactive and keep searching the reason. it is a hotrible disease and i wish someone could invent a pill to stop it. best of luck! chris

Hello Chandra,

As I'm writing this I have a Bose White Noise head set on my right ear. The tinnitus is so bad that I can hear three distinct tones from low, mid and high frequency. There are times I gets so bad that the tinnitus feels as if it is generating in the middle of my brain. I have experienced this since 1976. Have had two shunts installed and steroid shots through the eardrum. It got to the point that I experienced "drop attacks". This results in a sudden episode of dizziness, loss of balance and simply dropping to the ground and waiting for it to end. We are somewhat left to our own devices to control our symptoms. My issues were so bad that while asleep, I fell out of bed from the room spinning. I cannot tell you how emotionally devastating this was. Ultimately, to stop the attacks, I had the right balance nerve sectioned. I had to relearn to walk which took about 4 weeks but have never had the balance issues again. Unfortunately, the tinnitus has not diminished, but I don't have to fear driving or walking. The surgery was performed in 2010. I hope this helps.