Importance of Clobetasol?

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Are some of us actually saying that Borax etc alone are sufficient to keep us from suffering from Lichen Sclerosus?  From personal experience, I think the importance of using Clobetasol or equivalent should not be underestimated.  Is it not this high dosage hydrocortisone that initially combats Lichen Sclerosus?  Once the Clobetasol has the LS under control, the borax, baking soda and coconut oil or other emoliant are greatly helpful in keeping us comfortable.  But I could not have gone on with the dreadful itching and burning and tearing without the regular use of Clobetasol.  I simply use it twice per week and the 'comfort' products daily. Wonder if others agree here?

 

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  • Posted

    I believe some of us are saying, in our experience, the Borax has halted all other symptoms completely. And with regular use, the steriods are not necessary because there are no symptoms to treat. I personally had so much more success with the Borax than years on any of the steriods my doctor and I tried. She was very impressed with my results with the Borax and was looking into it for some of her other patients.

    The goal here is to support each other and share things that work to help others. After achieving the results some have achieved, we just want to help others, not suggest that people abandon what they're comfortable with or what works for them. I know when I found that thread I was in one of the worst flare ups I'd had in years and nothing was touching it. The Borax was a godsend. The common theme among these boards is that we're all here for each other and ready to share whatever might help someone else.

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    • Posted

      Indeed, The idea is to help us all here and thank you for that.  I so am only too happy to hear that Borax is proving to be the answer to our LS problems.  After 3 years of having to apply a steroid cream that I am not keen on, anything less worrisome that works as well for me is good news!  I just hope it works for me as it does for others here. Currently I am using  clobetasol as prescribed, but also applying borax as suggested in this forum but so far have seen little improvement.  
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  • Posted

    Yes, in first instance, I agree, globetasol is of great importance.  But I realized that I should not use it forever.  When all was under control I gradually did without.  Knowing that constant use would diminish its effectiveness.  Would LS flare up in a serious way I still have it at hand.  But for now baking soda and borax and coconut oil are all I use and I am comfortable.
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  • Posted

    I agree. I intend to discuss the use of baking sofa and or borax with my gynecologist next month. I anticipate his response but I'll tell him other patients have suggested this use. I've got a lot of life to come yet so I need to know if the Clobetasol will stop working in the future.

    For me I can really say that using Aquaphor all the time has been a big help!

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    • Posted

      I have a good relationship with my GYN and she's pretty open minded. But I actually didn't tell her what I was doing until she had finished the exam and mentioned my improvement. She was very intrigued and wrote it down to look into it more. She said she wanted to suggest it to 2 other patients of hers who are worse off than I am.

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  • Posted

    Hi Helen, I fully agree with what has already been said here. My experience has been that the Clobetasol was not keeping me symptom free. My Gyno recommended I use it daily until the itching, biting, burning etc stopped, which it never did. When I started on the Borax baths all of those symptoms stopped immediately. My Gyno is OK with my using the Borax and not the Clob as long as I have no symptoms.

    I am new to my recognition of LS and so have a considerable amount of fusing which I hope will release/unfuse with persistence and dedication with the Borax baths, solution and oils.

    I am wondering though if careful use of the Clobetasol will stop any additional fusing? Anyone have any thoughts on that???

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    • Posted

      I learned that too long use of Globetasol will deminish its affectiveness.  So perhaps that's why with you it didn't help anymore either. 

      ?With the Glob the fusing didn't stop.  With at first baking soda and later borax treatment it ever so gradually undid the fusing.  It's not a cure, but it holds LS back and more.   

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  • Posted

    My gynae who specialises in vulval disease said that LS can get quite a hold without becoming symptomatic and that it is likely that symptoms occur only after we've had it for some time.  My understanding is that the clob works (if used properly) at a deeper level to hold back the LS.  She reckons I'll always need to use it because of the nature of my LS.  I haven't discussed borax with her - I will - but she did say that baking soda can increase liklihood of fungal infections which made me stop using that.  She did say that lubrication is critical, not just for comfort but also to help hold back symptoms so she certainly wasn't saying clob only.  But for me the clob is an essential part of the mix.  Interesting to read all the posts on this one.

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