Improvement in Graves Disease recovery by using L-Carnitine?
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When I first posted to this Board, I shared my story about the vast improvement in recovery from my Graves disease when I added first regular L-Carnitine and then Acetyl-L-Carnitine (which I obtained from a Health Food Store as well as by prescription) to my treatment regimen.as well as Vitamin D. Before I added this, I got blood levels checked and I was deficient in both Carnitine and Vitamin D. I believe all Graves patients are deficient in these two indices. My disease was caught early and I was put on 10 mg of Methimazole (similar to Carbimazole in England). This immediately normalized my T4 and T3 but did not budge my TSH which remained at less than 0.01 for 2 years until I then added the Carntine. The acetyl-L-carnitine raised my TSH the most, well into the normal range. It also got rid of my eye irritation and I was told I no longer have Graves antibodies. I was also able to decrease my Methimazole, now down to 2.5 mg. I would really like to follow up with those of you who have tried this and had success with it. I'd also like to hear from people who feel it didn't help them.
Thanks.
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fern12 linda187
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linda187 fern12
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fern12 linda187
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Sue1247 linda187
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emmaj43 Sue1247
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Sue1247 linda187
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linda187 Sue1247
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linda187
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linda187
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emmaj43 linda187
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linda187
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gurm linda187
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Sue1247 linda187
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emmaj43 Sue1247
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I am trying so work out whether to have surgery or RAI. Just wondered how you have come to your decision - I am currently swayed to surgery purely as RAI sometimes doesn't work or takes a while to stabilise and you can't go near children. If I had surgery I would be stable straight away and on thyroxine and problem would be solved. However I am scared of surgery and don't like the idea of losing this gland and relying on medication. I am very indecisive at the best of times. Ideally I would like to have neither but I have been told I was so high first time round it will come back.
Thanks Emma
linda187 Sue1247
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Before I took Carnitine, I asked my boss, who is a Genetic Metabolic physician and who uses Carnitine to treat some diseases his patients have about it and he told me it would not hurt me. Secondly, I got my Carnitine level measured before I took it as a supplement and I was deficient. I got it measured after I started on Carntine and I am still in the normal range. Carnitine is an amino acid that occurs naturally in the body so if it is deficient, I would imagine your body doesn't work well. I would also suggest anyone who wants to take it should get their levels checked before they start on it. I want mine to be within the normal range and they are.
hope4cure linda187
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