In bed for week

Oh rose I feel for you totally . All the pills we take just don't cut it I no myself when I have a bad week I don't want to be here anymore my kids keep me going who are 1,12,16 ! I'm horrible to my partner of 15 years and I just want to be left alone most of time so it's putting a huge strain on everything! Today I have pain first time for few weeks but I have my period to which is just bloody agony! If your doc days stop the gabapentin then do Hun I'm on pregabalin and it does work

Lots of love xx

Hi rose1941

?I've read your post quite a few times now.  The first thing I advise is that your life IS worth something.  No matter how much you may feel your family does not understand how much pain you're in, I'm sure they don't want to be without you.  My family don't particularly understand my pain and problems, but, even though a tremendously high amount of time I feel useless, doom and gloom, etc, it's that tiny percent of me that thinks "sod this, I won't give up".  I also spend quite some time on forums and various sites putting my voice in and attempting to save animals.  For example, Facebook sharing.  I have an incredibly low opinion of myself, but reading other peoples' posts and "trying" to help, sometimes takes my mind off myself (but my pain never leaves me).  I've lost count of how much I feel I'm not worth much, either, through endless years of things going wrong, but I couldn't bear the thought of what would happen to my animals if I wasn't here to love them.  I won't bore you with all my doom and gloom, but PLEASE don't give up x

I think this illness brings all those thoughts to us at some points, it does get better, however we mourn the life we used to have and without a cure we will not be the same as before, however once you accept this then you start to allow yourself to be ill, and try to cope as best we can. I really felt so tears when I read your post but honestly things will get better I promise, and try explaining to your family how this illness affects you. I got my family to read up on things I had downloaded about Fabriomyalgia. Since then they understand a lot more.

I feel for you too Rose, a have recently been through the same myself, there is a light at the end of the tunnel and you do matter. The people around you don't want you to go, just because they don't understand what you're going through. It's always hard for well people to understand what it's like to be unwell everyday and to be in so much pain with no physical injuries. You will feel better soon and that will give you the strength to go on. Try your hardest to get some fresh air if you can. Just sit in the garden for 10 mins it helps me so much, listen to your favourite album or watch your best film, anything to help lift your spirit and the rest should follow. Imagine the pain isn't real and really believe it. These things help me get through, I hope they help you some how - keep in touch if you want, I hope your well soon - Pete

Hi Rose, Oh my goodness sweetie. We all feel the way you do at times. Just always remember that tomorrow is another day and it usually brings more hope if we just hold on. You are feeling depressed at the moment sweetie. Pain can do that to us. It makes us feel somewhat hopeless. But life is never without hope. We could all look back at when we were feeling well and concentrate on what we don't have anymore. But that is very counterproductive for us. We have this condition, but it could be worse. We could be living in a third world country where there is no sufficient medical help or living conditions. So try to count your blessing sweetie. And you do have blessings. You are just not seeing them because of your distress. And your family loves you Rose. They can't fully understand but that is normal. FM is complex. It is confusing to people. Just know that you are not alone Rose. Millions of women and even men around the world, cope with this chronic condition each day. You will too my girl! Never despair. You will have better days believe me! I have had this for over 35 years now. When I am feeling unwell I read more. Nice stories that upbuild. I stay away from stressful movies or sad entertainment. Life is hard enough. I am dealing with a depressed husband as well so that is a challenge in itself. So, one day at a time Rose. Just do the best you can and don't put unnecessary pressures on yourself. Warm hugs! Maggie xx

Try to print off all the information you need that provides all the bad things this illness can give you, then try and get your family to read up on it so they have a better understanding of what you have to go through on a daily basis xx that's what I found worked for both me and my family. All the best friend

How are you feeling Today Rose ?

Hi rose1941 Bless you I have spent weeks and months in bed in so much pain agony, so I understand how your feeling what your going through. do as the dr has surjested and go from their easier said than done but try to relax and not stress as that only makes matters worse. Things will and do get better hun youve got us on here to talk to so dont ever feel your alone your amongst friends on here at least we all know how each other is feeling and going through. take care gentle hugs