In need of some advice

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Hi I'm new to this site recently been diagnosed with Addison's disease and feel quite alone the doctors seem to either just fob me off or don't care any information anyone can offer is welcome and also does anyone no a specialist I can be refered to 

 

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  • Posted

    Hi Amy

    sorry about your diagnosis, I'm awaiting testing for Addison's myself on 12th Feb - my Doctor suspects I have it and has referred me for tests to a local Endocrinologist. Is that how you were diagnosed? As I understand it, its the Endocrinologist who is the specialist so I imagine that's who you'd be referred to now, but not completely sure? Would you mind sharing with me what your symptoms were please? Lisa x

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    • Posted

      Hi Lisa it was all linked with my symptoms as to why they found out I had it but it was the chest consultant,the endocrinologist I saw 2 days ago was useless, my symptoms were dizzy spells, migraines,sweating, fatigue,falling asleep in the day, shaking etc do you live in London.and who have you been refered to? Amy x

       

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  • Posted

    Hi again Amy, I'm in Newcastle actually. I have all the same symptoms you describe except for perhaps the shaking. So what exactly did the chest consultant do to diagnose Addisons, was it some sort of test or did he just go off the symptoms you described? Don't think I've heard anyone say anything good about Endocrinologists so far! Not looking to my visit on the 12th! x
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    • Posted

      Hi Lisa

      the test was an syncathen acth test they take blood then inject something that affect s the cortisol level they  then repeat blood test every half hour for 2 hours  and this wil tell the if ur cortisol goes up or stays low. Good luck for the 12th smile x 

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  • Posted

    Hi..my 18yr old also has Addison's but suffered for years before a diagnosis was made. Addison's has so many side effects that endocrinologist seem to put down as something else but from what I've read, is in fact linked. The trouble is, in our experience, endocrinologist's do not seem to know an awful lot about the disease..it certainly makes you feel alone!

    I found that reading books gave me a better insight to Addison's. 'My life with addisons' by 'Andrew Cole' was an interesting read and almost discribed my daughter.

    What medication are you taking at the mo for this?

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