In such pain :(
Posted , 12 users are following.
Hi I was diagnosed last year just before Christmas. Suffer on and off with rips tears and sores, Sometimes lumps. Most of the time the worst thing is the itchiness. My gynae prescribed dermovate but I cant get it anywhere it seems to have run out. Im in Kent England. Has anyone else managed to find it? Im put off from using it anyway tbh from a lot of posts I've read on here that it causes/ speeds up the fusing. My clitorus is changing shape, my labia are completely white and the condition seems to be deteriorating rapidly. I had it for 2 - 4 years before diagnosis, just thought i had thrush a lot. These past few weeks I am in such pain I'm walking funny. It's hard to sit down on a wooden dining chair and it stings all the time. I have been using my son's sudacrem (zinc) at night and that helps me sleep. Please help I hurt so much
3 likes, 14 replies
claire12259 gwynethleeks
Posted
I am in remission (touch wood!!!) at the mo and I put it down to my complate change of diet - no sugar (inc fruit), dairy and gluten. I have also given up meat but that's more of a general health thing. Please try, it's worth a go. Got results fairly quickly. Wishing u a speedy recovery.
xx
lorna65 gwynethleeks
Posted
The GlaxoSmithKline ( who make Dermovate ) factory burned down last year, it has since been rebuilt and stocks were expected to be back on sale at the end of January, It took me 6 weeks to find a chemist that had a tube. Unfortunately I find Dermovate is the only thing that works for me.
Maybe some of the other girls on the site might know of a chemist that still has stock
Good Luck
hanny32508 gwynethleeks
Posted
Second - read as many of the posts/discussions here as you can. There is a lot of good info that may be of help to you.
Third - Watch your diet as somebody already suggested. No sugar, no dairy, no gluten, no alcohol are the main things to avoid as much as you can. And watch your stress level.
Fourth - try rinsing with baking soda/bicarbonate after every bathroom visit. (three pinches in a spray bottle, the kind of bottle women receive in the hospital after delivering a baby.) It calms things down a bit. Lubricate down there, apply after drying some coconut oil. (First little while may sting a bit.) This combo of things helps fight the fusing/white patches. Take baking soda baths every other day, (1/3rd of a cup in a bath) Sit in it as long as the temperature of the water is pleasant.
Hope this will help you on your way.
bennetta gwynethleeks
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christine94142 gwynethleeks
Posted
i am sorry you are suffering so yes go back to doc tell him you cant get it and sometimes you he will have sample packs to get you through . fortunatly i dont have food issues. but have stop drinking a lot of soft drink and gone to drining ice tea and green tea. baby nappy rash cream is good for me too it like a water repellant and keeps skin soft . i have suffered for 14yrs but only joined this group a few weeks ago and have had a lot of support from it so keep reading something may help also my doc put me on antideprssants too that helped for a long time but as my stress off my condition worsened i got higher dose now i am coming slowly off them as i am getting to mamage things better strees is a hugh factor for LS but who cant help it when theres no one to talk too . till i found this site
keep reading and you are not alone . thank everyone
monique67668 gwynethleeks
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justine89448 gwynethleeks
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suedm gwynethleeks
Posted
do watch the Dr Golsteinds lecture it takes an hour but explains the rational for treating the area with powerful steroids. Stress of any kind, including pain, will not improve the condition, but will frequently exacerbate it, so try and find ways to improve your mood, not easy but beneficial. Mindfulness meditation is said to be very helpful in dealing with pain. Itching - you can sometimes fool your body into getting relief by scratching or rubbing another part of your body
use tepid normal saline to swoosh over over undercarriage teaspoon of household salt to a pint of cooled boiled water, this is the same saltiness as the body so shouldn't sting. Dry the area with cool setting on hairdryer, keep away from smellies in the bath water, don't wear pans tights or trousers Do wear long skirts tho! You could try crushed ice in a plastic bag wrapped in a damp flannel, after you have protected the area with your barrier ointment
i think in your circumstances I would go to a lonely spot and shout as loudly as I could what I thought about the condition Good luck and take care Gwyneth, feel better soon
suedm gwynethleeks
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ChrissieM gwynethleeks
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yvonne20 gwynethleeks
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suedm gwynethleeks
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suedm gwynethleeks
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Bridge_of_Sighs gwynethleeks
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Good luck to anyone short of Dermovate, there are other brands around you can try, even if only for a short time until Dermovate comes back on the market again. I'm very grateful to the pharmacist for telling me.