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Hi to all, went to see my doctor yesterday and ended up in tears again, feel I am still not being listened to about my ME, he changed my medication and have to have bloods taken as I am having so many problems, I really feel very ill and frightened with it all, my head hurts so much feel like it is going to explode
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Sorry your GP is :bleep: Can you not change? If you read earlier posts we refer to Alicias guide, which is very good. It is meant for non sufferers but it might be an idea to show your GP that. :roll:
What medication are you on? My head aches badly when I am stressed, which you obviously are at the mo! :wah:
I can't make it go away, but I can empathise. Have a hug :hug: it might help!! :wink:
I have recently just found this forum & can identify with nearly every post on here .
Although my doctor is sympathetic , i do get the feeling that she rushes me out the door as soon as she can . Sometimes i barely get to sit down & i think she just want me to go away & come back when i feel well again !( if only ) :lol:
I can imagine how you are feeling . I have recently been to hospital for blood tests & have to go for some more as the first lot came back as "abnormal". I know how confusing & scary it can be as no one sits you down to explain what the tests are , possible outcomes etc & the terminology they use doesn't help either . ie "abnormal"
( although i have never considered myself normal , i would consider accepting "unusual" :D
Just know that we understand how you are feeling & can understand why you are feeling like that . Hoping you feel better soon .
Hang on in there. We can all relate to how you feel and how wretched and hopeless everything seems at the moment. I can well remember honestly thinking that my head was going to explode any minute, in my earlier ME days. Thanks goodness that seems to have subsided now. As Dale says, the fact that you are so stressed and frightened just makes the situation worse.
It never ceases to amaze me how some GPs just don't seem to have any idea about the illness - I've totally given up with mine - a visit (when I can get an appointment!) just makes me feel more isolated and frustrated.
Is it possible to see another GP in the practice who may have more of an understanding?
Take care and do hope you feel a little better soon, but don't forget we have all been there, and understand how you feel - if that helps at all.
I do give thanks for my current GP who admits his knowledge is limited but tells me to come in if I ever need a chat. He is a gem. Thank you Dr Marlow. x :oops:
Firstly please dont be shy around us, were all in the same boat and all have mainly the same problems, theres a great bunch on here and were all here to listen and help were we can
Alicia has a great paper on M.E for none sufferers (thank you by the way), you should grab it with both hands and take it to your doctors, im sure if you PM her she'll be happy to send you a copy
When you are first diagnosed or even before it is very scary, ive had it for 8 years now and kinda learnt to live with it, but yes it is very scary, even i was frightened by what was going on in my body and mind, and for years i was so frustrated by not being able to get any help, i do believe theres alot more help and support nowadays but it doesnt take away the fact theres still alot of ppl in the medical profesion that still dont understand or listen to us, thats why you can help yourself by sticking to sites like these were ppl do understand and listen to what your saying
Spk soon and take care
Cyber friendships really do work, I can assure you, and these cyber friends are lovely. :D
If you want a copy of the Guide to M.E. for the Non-Sufferer from the National M.E. Centre just PM me your e mail address and I will send it to you. :D
The 'gang' on this forum are a really great bunch and as well as having fun, we are also always there to help anyone who is need of advice or maybe just a bit of TLC. :hug:
I was very shy when I first found this forum and not quite sure what to say, but I couldn't be without it now. It has really helped me to understand and manage this illness in a way that no GP or specialist could probably ever have helped me.
As Alicia says, we can all remain anonomous (spelling?) if we want to and say just want we like. :magic:
PS ME plays havoc with ones spelling - nothing I type looks right :roll:
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