Increase heart rate when standing

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Hi in 2014 I had three attacks of fast heart rate is was sent to hospital and given a heart ultrasound which showed everything to be OK the attacks was short lived and so in the end was put down to panic attacks I got given a holter months later which came back fine ..

Now I had on and off heart racing episodes since then and put them down to panic attacks I have anxiety so it made sence I had a baby 8 weeks ago after having him I realised my heart rate was low 56bpm and had a few palps so later that day I got a ecg was told it's normal if I get more palps go to doctors and ask for a holter monitor still heart rate was low but I put it down to just giving birth and then a week after giving birth I got very weak and severe dizziness I felt like I had the flu for a while 5 weeks ! I went to hospital who said everything was OK and I could go home I went home but was getting palps while standing so I put it down to anxiety until I woke up unable to breathe my body was numb and my heart was going what felt wrong it lasted like probably 5 minutes but felt like hours my heart was still palpations just not as bad so I took my heart rate and bp and both was high my heart rate was 144 ! I got dressed went out to my mums very out of breathe and still palps I took my pulse it was 146 I rang 111 who said go to a&e I got there and it was flucating from 115 -145-179 ! I had a ecg which said abnormal but they said it was fine I was later discharged with blood work and ecg normal .

When I went home I realised my heart rate was fast upon standing and everytime I stand now I have a fast heart sitting is OK but a soon as I stand walk or anything my heart rate is anywhere from 115 -160!

I have to still go about like normal and wait until Tuesday where I see a private cardiologist but I'm so anxiouse I won't make it until then

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  • Posted

    If you could please let m know if you have found anything out I would really appreciate it.  I have been having the exact same thing since I was 12 weeks pregnant and my son is now 18 months.  I have spent thousands of dollars and everyone just throws the anxiety card at me!  I am 25 years old and can’t live this way anymore!
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    • Posted

      Hi Ashley,

      I’d youre still looking for answers, I’d recommend you check out this link:

      https://www.dinet.org/content/information-resources/pots/pots-an-overview-r95[/b]/

      It sounds likely you and others on here have POTS. It can be very debilitating but can also respond well to treatment (often beta blockers or vasopressors). It can make your body react in similar ways to anxiety, but is not anxiety.

      It is a physiological, not a psychological condition. It often develops after things like viral infection, surgery or giving birth. 

      A cardiologist can help, but only one who is knowledgeable in the conditionnot many are because research into the condition has really only taken off in the last 5-10 years.

      Good luck getting help.  If you have difficulty, the dinet.org site has info on an easy test (not tilt table) your primary care physician can do to see if you have POTS. Then you can talk to your doc and at least follow the advice on the site until you can find a qualified specialist to treat you. 

      Hope that helps. 

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    • Posted

      Hi Ashley,

      I Just wanted to say that your symptoms are totally indicative of pots (postrial orthostatic tachycardia syndrome). I'm from the UK and I'm suffering from and going through the exact same scenario as you. My heart rate increase from lying to standing is around 30 40 beats per minute. My resting (lying down) bpm is 65 but as soon as i stand it increases to 100-115 and will not come down no matter how much controlled deep breathing I do. But as soon as i lie flat it returns to normal. I get out of breath easily now when standing (I was speed walking 3 miles a day with my dog 12 months ago and my heart rate was never fast and I never got out of breath or felt light headed ). To get diagnosed with pots isn't easy because it gets misdiagnosed as anxiety a lot but don't give up (I have an anxiety disorder, I've had it for 19 yrs and so I no all about the difference between an anxiety or panic attack and this is not an anxiety attack,it's an orthostatic intolerance). The best thing to do is look for a local cardiologist who either specialises in pots or has an interest in the syndrome and then go into your gp dr and insist that you get a referral to the chosen cardiologist (you may even to be able to refer yourself in the states,I don't know). Do not except anything less. Pots can be easily diagnosed by a consultant who treats or knows about it. They do a tilt table test where they measure your heart rate ( and blood pressure) while lying flat and then the table raises you to vertical and your heart rate is then tested again. If your heart rate increases by over 30 beats per minute on standing then you will generally be diagnosed with pots. Other symptoms of pots are,fatigue, breathlessness,exercise intolerance,lightheadedness,and lots more. If these symptoms you have are relieved when lying down then you clearly have an orthostatic intolerance- ie pots. A consultant may need to do some other checks on you to rule out any other possible cause of this intolerance, ie blood samples to check for anemia, or thyroid problem,or a heart monitor check. I'm not yet diagnosed myself I'm waiting to get a private referral (that I can't afford) to see a local NHS cardiologist I've found who has an interest in pots and I'll go from there. Pots all though not life threatening in itself can end up being very debilitating. You may end up feeling chronically fatigued and bedridden,generally unwell, and massively p****d off, which will only make any slight anxiety or depression much worse, just like I'm finding out. It's all about finding the right dr and then once diagnosed the treatment for pots is and can be very successful. They try compression stockings to keep the blood up away from pooling in your legs so your heart doesnt havery to pump so hard. They recommend a big increase in fluid intake and possibly salt tablets and then a graded exercise plan etc. And last but not least medication-ie beta blockers or some other drug that help slow and control the heart rate increase.

      I hope if your still suffering that this will help in some way cause I know how u feel-I just want my life back my ability to do the basic day to day jobs and activities that i was doing everyday until this orthostatic intolerance started 6-7 months ago.

      Best wishes

      Dan

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  • Posted

    Hey stephx

    English is not my native language so excuse me for any typos,

    Im 28 years old male and ive had same symptoms upon standing for a while and also feeling lightheaded and out of breath when heartrate increases too high.

     I was hospitalised for few weeks last year cause i was unable to stand up and sometimes even to sit because of too high heartrate. I belive this might have something to do with central venous pressure and increased bloodflow to heart and lungs(This is symptom of something causing it, maybe too much activity within parasympathic nervous system activity?). This might keep your bp quite normal but still have major symptoms. Increasing your GABA within your brain might also give you some relive in symptoms. Im myself still struggling with symptoms but im feeling alot better than last year. I dont know if it had anything to do with this but i quit smoking few months prior getting massive increase in these symptoms so maybe nicotine as vasosupressor was hiding scale of this problem before. 

    I hope your feeling better and if not maybe bring up the Central venous pressure and tests for it.

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  • Posted

    I have palpitations as well. Mine would race when I stand up. I could not even walk to the bathroom without my heart beating out my chest. I would feel dizzy, lightheaded, faint, and have shortness of breath. Have they checked you for POTS.  It sort of sounds like what you are describing. 

    There is this book that I read "ARRHYTHMIA AND  PALPITATIONS: When You Have No Clue and Your Doctor Can't Find What’s Wrong! The book is by Krystie Love. She discusses several reasons as to why your heart is beating so crazy. It is worth a shot. POTS is in the book. It does not go into too much detail; however, it does give you things to discuss with your doctor. Look for it is is on Amazon. Good luck!

      

      

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  • Posted

    Hi Steph, I was wondering if you found out your diagnosis? I'm having the exact same thing lately. As soon as I stand, my heart rate is in the 100s. As soon as i sit it drops to low 80s. It's really scary. I feel like i can't do much anymore.

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  • Posted

    Hi, I’m 28 years old and I have been going through these same symptoms for 8 years now. It became even worse after I had my son 3 years ago. Sitting my heart rate can be in the 80s and jump up to 130. Just this morning going from a laying position in bed I felt it increase a lot, then I stood up and it was 124bpm. All of my doctors say I have tayhcacardia and anxiety disorder. I take beta blockers to slow my heart rate down, but I’m having a hard time because the beta blocker lowers my blood pressure to much. I’m also on Ativan for anxiety. I have done almost every cardiac test there is. All saying normal thank the Lord, but I’m still dealing with this issue and I can’t function like I use to. Please let me know if they could help you. Thanks
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  • Posted

    It's with great sadness as Dan's partner I wanted to let you know he sadly passed away on June 6th 2018 He couldn't live with the suffering & heartbreaking he took his own life...💔

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  • Posted

    It's with great sadness as Dan's partner I wanted to let you know he sadly passed away on June 6th 2018 He couldn't live with the suffering & heartbreaking he took his own life...💔

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  • Posted

    Search up Postural Tachycardia Syndrome (POTS) its can be caused by hormone changes such as pregnancy

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