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Increase in LS?

Posted , 8 users are following.

Bridge_of_Sighs
Bridge_of_Sighs

Hi, this is a question for the old timers on here. I've been here for five years, and it feels as if the volume of traffic is increasing.

1) Is there an increase in diagnosis? which would be a good thing.

2) Are more people getting LS? A bad thing

3) Are people more open to talking about LS?

4) Is this forum getting better known?

5) Is it due to increased use and knowledge of internet resources? and does that mean younger (more tech savvy) people are getting diagnosed quicker?

6) all of the above?

I feel it's really striking how many posts there are right now, compared with five years ago. Or maybe, due to time and algorithms I am just seeing more of them... Any thoughts?

2 likes, 9 replies

9 Replies

  • deethebee
    deethebee Bridge_of_Sighs

    Posted

    I think its becoming more talked about. 

    My gynecologist said that it is quite a common disease which often goes undiagnosed but the fact that there is so little research done about the causes and finding a cure is very worrying.

    Although steroids do the trick of soothing, they are  acting like a toxic plaster. I certainly do not want to spend the rest of my life having to use it.......

  • DLB129
    DLB129 Bridge_of_Sighs

    Posted

    Hi there

    Yes I have noticed (and commented to my daughter just a few days ago) that I seem to be getting so many more email notifications now.  Much more noticeable in the last month or two.

    I asked myself the same questions - sad if it's becoming more prevalent. Good if it's being talked about more. Good if the forum is being more visible.

    Not sure of the answers!

     

    • brigitte_27336
      brigitte_27336 DLB129

      Posted

      👋, also good in a way if there is more diagnosis because it means that at least the women won’t be treated for simple yeast or trush....to get no relieve and learn much later that it wasn’t trush. It’s sade to get diagnosed but if more women are getting diagnosed maybe research will start one day...

  • jeri24294
    jeri24294 Bridge_of_Sighs

    Posted

    I agree with "all of the above" and plan to ask my doctor next visit if she is seeing more patients with LS.

    Thank heavens for this forum!

    • brigitte_27336
      brigitte_27336 jeri24294

      Posted

      This forum is the best .... I hate LS but at least having LS brought me here ....soft place to be when you’re stuck with this desease... 
  • eileen59440
    eileen59440 Bridge_of_Sighs

    Posted

    i've been on this group for about a year and i noticed an increase.  we recently moved about 160 miles from the town where i saw an md who diagnosed me.  since we were in the middle of a move i had not seen a gyn doc yet.  have my first app beginning of june and looking forward to what she has to say.

  • Guppy007
    Guppy007 Bridge_of_Sighs

    Posted

    There does appear to be an increase in posts.

    I do have a horrible feeling that more and more women are getting LS. 

     

    • Bridge_of_Sighs
      Bridge_of_Sighs Guppy007

      Posted

      On reflection, I think it might have a lot to do with diagnosis. Back when I first got on here, everyone's doctor was saying it's a rare disease, now a few people are saying that they have doctors who say it's surprisingly common. Having said that, there do seem to be more younger women than before, but again that might be because they are more likely to use the internet to browse symptoms.

      Then again, we do have more toxic lives and some of us older ones were young when the chemical load on our bodies wasn't understood in the way it is now. It's difficult to unpick multiple causalities. I do hope it's not that more women are getting LS, just that LS is getting better understood.

  • brigitte_27336
    brigitte_27336 Bridge_of_Sighs

    Posted

    Hi Brig, i found this site 1 month ago ( blessing) , after suffering almost 5 years alone thinking I was the only one with this desease. I am very surprised to see the amoun of women searching for help. I don’t remember how I found you guy’s but maybe algorithm makes it easier for us to find the site. One thing for sure i think a lot of women are getting more aware of there bodies also because of internet research. Xx
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