Posted , 30 users are following.
I took my first dose of 6 - 2.5mg pills last night for my arthritis. Woke up a few hours later in the most excruciating joint pain I have ever had--in EVERY joint including my knuckels of my fingers. Anyone ever experience this crazy reaction to this medication??
1 like, 58 replies
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luz02964 jacob75577
Posted
debbie06295 jacob75577
Posted
Hi. I have been taking mtx for psoriatic arthritis for over a year 10 pills or 1ml inj and honestly I always feel bad with extreme joint pain the
Next day I don't always tolerate it for a few days after but without it I can't move. I also take cosentyx once a month 300mg inj. This disease is a tough one. I swim as often as I
Can. It helps. No pain in water
Either. I am trying a new diet with a doctor tmrw. No carbs at all desperate times sick of pain. Good luck. 3 yrs over for me. I'm willing to try anything st this point.
judith09301 debbie06295
Posted
Hi there. I got diagnosed with RA 2 years ago. Initially I was started off on Sulfazalazine but since January this year I also take 15mg (6 tablets) of MTX. So far I haven't had any massive pains after taking mtx. Sometimes my hands and knees feel a bit stiffer in the morning but I find that moving around a lot or exerising helps a lot. This is me at the moment. A year ago an acaintance made me aware of the AIP paleo diet (Auto Immune Paleo) which cuts out all grains (carbs), sugars, eggs, dairy and some other foods but also highlights many other foods as must-have (there is lots to eat!). I had never thougt I could give up my beloved bread and pasta but I changed my diet I really didn't miss it. I followed the AIP diet for a few months and started to slowly reintroduce certain foods step by step to see how I went. At the moment I eat mainly paleo (bit less strict than AIP paleo). Next to the diet it is also important to exercise regularely (walking, swimming, cycling or whatever you love doing which makes you feel good - has to be enjoyable) as well as rest enough, sleep enough and reduce stress (of any kinds) as much as you can. Has it all helped me? I am still on meds which I need, but I feel more alive again, less brain fog, a lot more positive, all which makes me cope with RA joint stiffness and low level pain a lot more. To me the combination of diet, best quality foods you can find, exercise, rest and less stress has helped greatly. I can highly recommoned looking into the diet, but keep in mind everyone is different and everyone needs to find their own diet balance in the end. I can give you a few names you can google which are good starting points. It will take time and a bit of patience. My acaintance back in Oz worked togeher with a Naturopath who guided him which can be costly though. Here are a few names to google: Sarah Ballantyne - the Paleo Mum, then there is also Phoenix Helix by Eileen Laird and there are many, many others, some more commercial than others (stressful!). Give it a go - but don't stress about it too (very important). Good Luck.
sissie1012 judith09301
Posted
God Bless!
karrenau judith09301
Posted
I haven't looked into Paleo but I have dramatically reduced my intake of inflammatory foods, ie processed carbs (I still have some brown rice), sugars, 'nightshade vegetables' (tomatoes, peppers, eggplant, white potato), beef and alcohol. From these, I think sugar and processed carbs are the worst. If I lapse and have some - I do notice more pain.
cynthia56793 jacob75577
Posted
Yes I have, wasn't any fun either told my rheumatologogist and he said I probably had a virus , wasn't at all. Will be finding a new rheumatologist
karrenau jacob75577
Posted
I just started my second go at taking methotrexate a week ago. I have psoriasis, a couple of fingers affected by psoriatic arthritis and a couple of fingers affected by rheumatoid arthritis. A couple of years ago I started getting pain in my fingers. None of my other joints are affected at this stage, but my doctor said I should get treatment to prevent damage to my joints. I went to a rheumatologist who started me on 10mg methotrexate once a week and mobic for the pain. I had to take 5mg of folic acid in the morning, then at night take the methotrexate, just once a week. The mobic I would take every day. He said it could take a couple of months to start having an effect. I had various side effects - feeling a bit nauseous, tired, achy, fuzzy headed. Originally I was taking the tablet mid week, but I switched to Friday so that I had the weekend to get through most of the fuzziness so I could cope at work. After 2 months, although the swelling on my fingers had improved slightly, I didn't really notice any difference with the pain, so I went back. He upped my dose of methotrexate to 15mg per week and prescribed stronger mobic. I continued taking it, and just when I started thinking about stopping it all because I was sick of the side effects, I came good. The pain stopped, I realised I hadn't taken mobic for a week because I hadn't had any pain, and the side effects had subsided. Then after another few months last Christmas was coming up and I had a 6 week holiday booked for earlier this year when I knew I was going to be drinking alcohol, so I decided to have a break from taking it. That went fine (except my psoriasis flared up after a couple of months - the methotrexate had also really helped that). About 6 or 7 months after I stopped taking it, I started having pain in my fingers again, and some tingling this time too. and in more fingers than before. I wasn't keen on starting methotrexate again, I was worried about long term use and I do like to have a drink on occasion, and I was also worried about going through all the side effects again. I went back to the rheumatologist and had a chat - he has had patients on methotrexate for 15 years and they're going well. He also said most of his patients have a drink occasionally. As for the side effects - this time he's started me off on 5mg and said we'll work our way up from there. I had my first dose 9 days ago and I've felt a bit out of sorts all week but nothing major. I took my second dose Friday night and yesterday afternoon I had really achy legs, but it went away after a few hours. I'm hoping I can cope with the side effects and I go okay. I'm lucky that I have never had excrutiating pain but I can see that not being on anything my fingers and then probably my other joints are just going to get worse, so I want to prevent any further damage so that doesn't happen.
jc1967 jacob75577
Posted
I’ve just joined the site as your post sounds just like my history. I was first diagnosed with fibromyalgia then polymyalgia and steroids helped some,. Like you methotextrate causes extreme muscle and joint pain. but I finally got the correct diagnosis of psoriatic arthritis and have begun remicade infusions and what a difference it’s made in my joint pains in my hands and feet and it’s even helping my terrible spine pain. (Several surgeries and arthritis of the spine). My rheumatologist wants me to stay on the methotextrate so I don’t develope immunity to the remicade but I plan on discussing it with her, it’s just not worth feeling that terrible 2-3 days a week. I hope you have found some relief. If you haven’t tried remicade I highly recommend it.