Increasing pain
Posted , 12 users are following.
hi I've been slowly feeling worse over the last couple of weeks and today woke up feeling dreadful , I'm aching all over and feel worn out, I haven't over done anything as I've been unable to do much at all . I am currently reducing slowly from 6mg to 5 1/2 I've only had one 5 1/2 then 6 6mg and was going to go to two 5 1/2 from today but really I'm wondering if I should be increasing and if so do I go back to say 7 when I was better at that dose
thanks for your help regards Molly
0 likes, 39 replies
iellen32 molly1957
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Take an amount able to feel as you were before and don't wait any longer.
I am sure you will go around this present reality!
Better days ahead I wish to you!
😊🌺
molly1957 iellen32
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hope your well
iellen32 molly1957
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Tha same is happening with my GCA I had a flare up and now I am trying to get the right amount of Pred again. Yesterday it looks like I made it and today since morning I notice the difference for the better.
Hope you manage to feel well🌺
Tastyron molly1957
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Sorry that I'm not much help but the more experienced members will be along shortly I'm sure and will give you better advice.
Hope you get it sorted soon.
Ron
molly1957 Tastyron
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MrsO-UK_Surrey molly1957
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molly1957 MrsO-UK_Surrey
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thanks Molly
MrsO-UK_Surrey molly1957
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Daniel1143 molly1957
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i think the reality is that your PMR has a mind of its own and we find out our threshold only through tapering. But we cannot taper faster than the underlying PMR will allow. Sad truth.
MaryPat molly1957
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faye______00403 molly1957
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will be hard to face the day because you are so tired. I just had
sed rate done and it was 9 which is considered really good. I
reduced 1mg from l9mg to l8 about a week ago. Sure hope I don't
have to go back up. I would love to be at 5-6. Maybe you should
go back to 7 for awhile and then try again. Better to do that than
to risk huge flare and have to really increase dosage..
Geeezzz don't we wish we had all the answers?
Handbrake molly1957
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EileenH molly1957
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Your rheumy may want you to reduce by 1mg a month - but if the cause of the PMR symptoms is still active, you need the amount of pred you need to manage it.
That is the whole point of taking pred: it manages the symptoms until the underlying cause goes into remission. Yours isn't yet - whether the rheumy wants it to be or not.
molly1957 EileenH
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EileenH molly1957
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molly1957 EileenH
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iellen32 molly1957
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Those night sweats + fever , flu like symptoms, pain around the joints, sore throat were my early sptoms - undetected by the GP I had by then.
I was blessed during a weekend with the appearance of a new symptom which led me to the ER of our local hospital where a bright doc in a couple oh hours and after an amount of tests gave me the diagnosis and the first Pred 60mg
Then came the biopsy and sequence of consultation with a specialist .
Just to tell you my experience not exactly as yours, neither the route cause as I see.
Hope you have it sorted out soon.
🌺🌺🌺🌺
EileenH molly1957
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molly1957 iellen32
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molly1957 EileenH
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molly1957
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MrsO-UK_Surrey molly1957
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EileenH molly1957
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molly1957 EileenH
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molly1957
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MrsO-UK_Surrey molly1957
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At the moment, so soon after the small increase, the effects of the daily dose are clearly not lasting as long as 24 hours (anything between 12 and 36 hours can be expected).
Although a few people do find that splitting their dose two-thirds in the morning and one-third at night can help with their early morning stiffness, I feel it might be a bit soon after the increase to confuse the body with yet another change at this stage.......unless that change is to increase the dose slightly further!
Certainly, I had to increase back to 10mg to manage a severe flare at 3mg - only you can tell the severity of your flare and whether you, too, would benefit from increasing further. The general recommendation is to increase by 5mg to get a flare under control, and the sooner that is done the better - any longer and it could need a return to the starting dose to really get on top of things.
molly1957 MrsO-UK_Surrey
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MrsO-UK_Surrey molly1957
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molly1957 MrsO-UK_Surrey
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Daniel1143 molly1957
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molly1957 Daniel1143
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MrsO-UK_Surrey Daniel1143
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The reason for increasing to the higher level is obviously to get control of the inflammation. But, if you only take the higher dose for just one day, the chances are that the inflammation won't have stabilised completely and as you reduce further the lurking inflammation is at risk of breaking through into another flare.
It is very often easier and faster to reduce back down the second time around following a flare but not right down as far as the original dose where the flare occured but a dose just above, where you last felt comfortable.
The flare that I mentioned in my earlier reply to Molly was managed by increasing back up from 3mgs to 10mgs for 2 weeks, followed by 7.5mgs for 2 weeks, then alternate days of 7.5 and 5mgs for another 2 weeks, before returning to 5mg each day. As that was the point where my symptoms had started reappearing, I was then kept on that dose for very many months, which with hindsight was wonderful advice as it gave my adrenal glands the time they needed to start catching up with producing their own supply of cortisol (natural steroid) that the body makes when well, having been suppressed by the long-term, artifical steroid, Prednisolone, allowing me to very slowly continue tapering to zero Pred.
molly1957 MrsO-UK_Surrey
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faye______00403 MrsO-UK_Surrey
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The advice from people that have been dealing with this
awful disease is so helpful. I stumbled around for about
two years not really knowing what to do and not getting a lot
of help from my Primary. It's not that he's not helpful I just
think he doesn't know much about PMR. So happy to have
found this forum. I told my doc I've learned a lot from it.
He pretty much lets me handle what i do now.....I feel I have
options now that I didn't know about before.
Thanks for all the help and advice fellow sufferers......
Anhaga faye______00403
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molly1957 faye______00403
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Thanks to to you all out there take care .
MrsO-UK_Surrey faye______00403
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