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Hi everyone, just to add my own experience of UFE. I had the procedure done on 7th February. The procedure itself was quick and painless, however I did develop severe cramps at the end of it. I was given Fentanyl, but due to an adverse reaction, this was replaced with oxycodone. There was more pain later that evening but it was dealt with using my oxycodone pump. The next morning I was feeling well and ready to go home. I thought I'd be up in a week and felt lucky to have chosen UFE over other alternatives such as myomectomy or hysterectomy.
Unfortunately, things went downhill from there. I developed fever (over 38C) which would just not go away. I'm aware that low-grade fever often occurs after embolisation but this was getting higher and higher. I called the hospital and they said if it goes down with paracetamol, then there is no reason for concern but if it doesn't, come back to us. I spoke to my GP who asked me to get over there to be checked over but I felt too weak to do that. Eventually, after a night of high fever that would not come down, I called an ambulance and was taken to A&E.
The gynaecology team saw me very quickly on arrival. They took blood cultures and did vaginal swabs. They thought I had a infection and put me on fluids and IV anitbiotics.
The pain that night was something I'll never forget. The tiniest movement made my pain shoot up to 10. I was groaning and moaning like I'd never before in my life. I was offered oromorph to deal with the pain but because of my earlier adverse reaction to Fentanyl I was reluctant to take it. My thoughts were I can't believe I'll be able to avoid hysterectomy this time, and to be totally honest I was so scared of sepsis I'd rather have my womb removed.
Eventually, I didn't have a hysterectomy but my seven days in hospital were hellish. Each dose of IV anitbiotics was followed by a burning sensation all over my body which felt like fever but wasn't. I also had diarrhoea and was frequently sick.
A week later the doctors told me the infection was in check and that I was well enough to go home on oral antibiotics. I didn't feel well enough but didn't argue. So I've been recovering at home since. I still have fever (around 38-38.5 C) and feel weak. I'm hoping I'll get better eventually, but it does take an awful lot of time. Doctors at the hospital told me to be on my guard over the next few weeks about discharge/fever because that could mean the infection is back.
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