Infliximab

fingers crossed that things improve.

I started infliximab in December and had the same problem. I felt okay at first but then had horrible stomach pains. I am now on it every 6 weeks and that has been helping. But still worse stomach pains than before I started. I still haven’t figured out why. 

No not foam, if you got foam, it was probably a cortisteroid....I'm talking about a liquid mesalamine enema, theu come in little plastic bottles and if you have never tried, then I suggest you try. If you end up getting some, it should be about 4 boxes of 8 bottles, so you get plenty. If you decide to get some, let me know and I will give you more instructions on how to use them, different then the instructions that come with them and different from instructions you may find on the internet. I am 3 years in remission, and take no meds. My mother had her colon removed. I tried all meds and diets except for immunosuppressants, none of which ever worked. The mesalamine enemas I saw almost instant results, after my symptoms went down, then I took other actions to finish the healing....Do you know if you have left-side UC or has it progressed to right-side?...God bless

Hi Tina, there is a small chance of allergy to mesalamine. You can Google the rare side effects from this, as well as the interactions with other drugs it can have.

So I'm sure you have tried so many restrictive diets and probiotics, as did I. The godsend for me was when the mesalamine enema worked to relieve symptoms, then I was allowed to see what was agitating my disease. I'm sure you have heard of keeping a food diary to figure out what agitates your symptoms, but what they don't say is when you are in flare up, it's nearly impossible to narrow down what is agitating you, since quite frankly it seems like everything. I helped a friend of mine who was having UC issues and within a couple of weeks she was already off her Lialda, though I did not tell her to do so. Tina, the problem with most oral medicines is they have their own side effects, which frankly are very similar to UC side effects. So...I don't know what current oral meds you are on, but when you get the mesalamine enemas, you might try not taking your oral meds. I know that is a big leap of faith! Also, I mentioned earlier that when the enema worked for me, that it allowed me to see what food was no good for my system. That food was red meat, cows, MOO MOO's😁. Twice after the enemas removed all my symptoms, I ate red meat, and had red blood the very next day. My friend has also removed red meat. You might try removing red meat and sorry to say, dairy really isn't handled well by humans. You know we are the only species that drinks another species milk on a regular basis! Get yourself some almond milk, plant based butter, and only olive oil for Cooking. While your taking the enemas you might also eat 3 coconut milk yogurts per day, that way you get live probiotics, without the cow milk. I also take a sip a day of Inner-Eco coconut water live probiotics. Back to the enemas, if you do get some, pleaae please write me so I can give you instructions on the use of them... God bless

By the way Tina, get off whole grains, and fiber. Lots of stuff out there says to eat all that, well that's all good for healthy people, but for UC, imagine a scab being rubbed off everyday, not much healing going on! You want to slow down everything. Eat soft foods, eggs, avacadoes, berries, white flaky fishes, and lots and lots of hydration! Hydrate using water or coconut water is a great natural inflammatory while also hydrating, up to a liter a day.