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Info. for Newbies

Posted , 6 users are following.

katie.k.
katie.k.

Thought it might be useful if we started up a thread for 'newbies'...... as all our info over the last few months appears to have gone AWOL.

We could all add bits of really useful info that we have posted on the forum in the past (if we can remember, that is :lol: ) and gradually build up a quick reference/support thread.

So I'll begin ........

Hi to any newbies smile

We are a group of folk that have one main thing in common - CFS/ME. We have got to know each other over the past months and have formed a fantastic support group - always here for each other ....... to have a laugh, a moan, share a good idea, or piece of info. ....... or maybe just a shoulder (or five) to cry on.

We all have varying degrees of the illness, some of us fairly mildly who are still able to work and others of us who are really very poorly ...... and those of us inbetween.

We always look forward to others joining us and make them very welcome ....... and help them in any way we can.

So please if you suffer from CFS/ME please do join us.

0 likes, 10 replies

10 Replies

  • Teedie
    Teedie

    Posted

    Good idea Katie :D

    Hi to anyone newly diagnosed or had CFS/ME long term :D

    Please feel free to join in the fun or simply ask any question or tell us about your experience. smile

    You can be sure that we will all introduce ourselves at some point 8)

  • LouLou
    LouLou

    Posted

    Hi all newbies from time to time you will here us talk about our bible, My bible is calles Livinf with M.E/cfs by Dr Charles Shepard, he is a doctor who during his medical training began to suffer from this dreaded illness.

    Any questions from anyone feel free to ask.

  • alicia
    alicia

    Posted

    Hello and welcome to anyone new. This also comes with a warning that we can be quite flippant and you will see quite a bit of banter from time to time. this is because we have got to know each other quite well and feel comfortable with each other. also the banter and fun is our way of sticking 2 fingers up to ME and not letting it totally ruin our social life.

    Please feel free to join in and do not run off thinking you have logged into a mad house.

    There is a wealth of experience on this forum, unfortunately it has been lost. But we are still here and can guide you through anything you wish to know about fatigue, joint and muscle pain, brain fog, cognitive difficulties, mood swings, sleep problems, IBS, in fact if you have a symptom, please share it for the benefit of others.

    Enjoy our forum. alicia x

  • katie.k.
    katie.k.

    Posted

    Another really excellent book that I always have by my side is:

    M.E. by Dr Anne MacIntyre (who is also a fellow sufferer). It is published by Thorsons Health.

    There is also a foreward by the writer Clare Francis, who begins by describing ME 'is to experience hell twice over, firstly through the devastation of the disease itself, and secondly through the lack of diagnosis, information and support that most sufferers are still having to endure'

    I think we can all relate to that sad

  • Dale
    Dale

    Posted

    Hi all

    Bit out of date now but I have been away. I tried to order that book Katie but it was unavailable at Waterstones.

    To any newbies, I am Dale. I have, compared to most, mild ME, but it is still c**p!

    Been ill all week and now I find the forum has gone! :yikes:

    Anyone joining now will not understand our banter or the relationships we have established :shock:

    I am gutted :evil:

    Dale xxx

    Dale xxx

  • Teedie
    Teedie

    Posted

    Dale, don't worry we have filled them in and i think they have got the just of us :lol:
  • alicia
    alicia

    Posted

    Don't worry Dale, Mike and Trees have sussed us out and are joining in. :D

    James had us sussed before the collapse. :roll:

  • katie.k.
    katie.k.

    Posted

    Yes, don't worry Dale ...... we have it all in hand :D

    Sorry you have been really poorly ........

    I've seen the ME book I mentioned, advertised to buy on the net only very recently.

    We all felt gutted for a while but that's precisely what was intended :roll:

    But bad luck whoever ..... cos it hasn't stopped us and never will :lol:

  • katie.k.
    katie.k.

    Posted

    Oh, thanks for that Hiliary ..... useful to know smile
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