Info for people taking Bisprolol
Posted , 11 users are following.
Hi, this is more of a warning or hopefully help to anyone prescribed this drug, or a family member that has. My father, a previously active 78 year old was prescribed bisprolol after a pacemaker was fitted in Sept last year. We were warned about possible side effects but nothing could have prepared us for how horrific they were. Cutting a long story short, once Dad’s prescription was upped, he started displaying symptoms similar to dementia. He was very quiet, but also very confused and struggled to get his words out. Over the coming weeks, he turned into a shell of the man he once was; barely any conversation, no personality and he just constantly hid behind his newspaper (but he didn’t appear to be reading it).
The worst came when he started to look for his mum....she died 50 years ago and he just couldn’t understand it when we told him this. Then he got my sister (his eldest daughter) and his wife (our mum) mixed up....then he started not recognising my mum altogether. To say this was hideous is an understatement - my poor mum, Sams age as him was caring for him but he didn’t know who she was. One day he even said to me ‘you can’t expect me to believe that’s my wife’.
As a family we were obviously distraught. My sister was convinced it was dementia, however it just didn’t seem that way to me. Eventually after a horrific 3 months, we frogmarched Dad to the GP and insisted they start withdrawing him from bisprolol. Within a week the difference was amazing - Dad was back! Within a fortnight he was practically back to his normal cheeky self and now it’s been 2 months he’s back to normal completely. The GP said it was likely hallucinations caused by these beta blockers and that some people can’t tolerate them but it was so much worse than that.
I’m writing this in case anyone is struggling to work out why their family member isn’t quite themselves - if I had read this at the time it would have given me hope.
1 like, 26 replies
Simba_16 Alison_wasNacho
Posted
i to am now off bisoprlol, it took me 6 weeks to do this, as withdrawl was very bad for me, with the shakes,feeling down for no reason,heart racing up and down, but now im back to my old self and in the gym 3 times a week.
It is a brave thing to do, just to do this all on oneself, but i have no regrets,despite my GP advising me,its my risk.
good luck, we all owe it to ourselfs and loved ones to challange some medicine .
Alison_wasNacho Simba_16
Posted
linda68593 Alison_wasNacho
Posted
Alison_wasNacho linda68593
Posted
Sorry Linda I only just saw this. I wouldn't know how to advise you on that I'm afraid - what did you decide to do? Hope you are ok.
Fraughtdaughter Alison_wasNacho
Posted
Thank you for writing about this, i have had terrible experience too with my mum. This medication has ruined a family. Mother was prescribed Bisoprolol following diagnosis of aortic stenosis 2 years ago, she then had TIA a year later, but they kept her on the Bisoprolol. After the stroke her behaviour became more agitated, anxious and then demented - accusing me of stealing clothes from her, telling friends that I was stealing things from her, seeing things that weren't there, rooms full of flies, hearing people in the house at night, she called the police out. Family was torn apart. I had been to Dr several times about the hallucinations, paranoia, vitriol and anxiety, I thought it might be that she couldn't see things as she has AMD, but I was totally ignored by my Dr who did offer to do Dementia tests but mum's memory very good, especially short term and she was clued up on her finances etc. My mother told me, on a day when she seemed quite calm, that she had had dementia tests and they were clear. It was worst year of my life. I didn't speak to her for 3 months!!!! I was so afraid to go anywhere near her.
A very old friend then phoned me in Jan 2019, to tell me about her change of address and that she had had terrible year in 2018. This friend is 93 years old, my mother is 87. Bright, fit, walking everywhere, amazing for her age. She had always taken aspirin until last year until her Dr changed it to Bisoprolol. within a few weeks, she was seeing a room full of flies, hearing animals downstairs at night, accusing her children of stealing from her, she called the police out because she had burglars - all in the mind! She said worst thing was that no one believed her. Her daughter, who works with dementia patients, dragged her to local dementia unit for tests. They all came back clear. Dementia specialist then asked what medication she was taking and as soon as she mentioned Bisoprolol, he told her to come off it. It would seem that the older you are, the more serious the side effects and one of them - which they state on the leaflet is very rare - hallucinations!
My relationship with my dear mum is now very tentative. I am half expecting her to start the gross accusations again. However, I understand that she is off the bisoprolol, she is looking a lot better and the accusations have stopped but the whole experience has been dreadful, I went through grieving process, was severely depressed as no one believed me. But just think of the dreadful experience my mother has been through too!! It really was hell on earth last year. You rely on your Dr to give the correct medication, when you go to see them several times because you are concerned with your mother's state of mind and her safety, you would think that the penny would drop and complete overhaul of meds done! The last time I saw my Dr, having reported to them that my mum was threating to commit suicide one night, and if she had another stroke I would not have access to her house to help her as she had taken all the keys, was that 'I would have to sit it out' . It was treated as dementia.Fortunately for me, a friend of my mother's intervened and got help!
I am writing this, because the medical profession say that they don't know of any side effects from this medication, well here are two and the person before makes 3 - all in elderly people with heart problems!! Perhaps the manufacturers will now take note. It will be interesting to read about other cases that might manifest themselves. And as my elderly friend said, she wouldnt have thought of taking to the Web to check or write about the side effects, so I am doing it for her and for everyone else out there that is having the same problems and no one believes them either.
Mardi Alison_wasNacho
Posted
Firstly I am so sorry to hear your family has been through this.
I am a younger heart patient 42 years of age.
I had a heart attack and put on Bisoprolol two years ago.
My cardiologist is very happy with heart progress young and able to rehabilitate well. The first little while went fine - motivated. What went on to happen has not been acceptable! Severe severe insomnia 3 nights in a row without sleep, falling a sleep for an hour then wake up screaming, breakdowns, yelling screaming at my family out of frustration, chest pains feeling awful, nervouseness, adreanlaine rushes, it ruined my life, work everything!
After 18 months I finally got the cardiologist to semi admit bisoprolol causes sleep disorder and nightmares, breathing difficulties. I didnt need it while trying to recoup from the heart attack I am very lucky that my heart function has rehabilitated to some extend and I am healthy! I thought I was on a verge of another heart attack I felt so awful. None of the doctors would have word of it! They just put me on tables for mental health that has increased my weight back up after working hard to loose it.
It has been an awful road! The cardiologist has kept me on bisprolol medication because it was the one targeting my heart function the best and needed to be on it. he has just recently said that there are two other that I can try Nebliet and Atenolol its a risk but he is happy now we are at this stage to allow me to try. Well just watch the vitals closely that the other beta blockers work.
Oh good luck to everyone! We are our own advocate and we must not tolerate this.. Its not fair.
And for me when no one believed me it was actually the worst! I just wanted someone to believe or admit this medication could do this! and help me make the changes I was edemanding instead they through I was ready for the psychology ward
Mardi Alison_wasNacho
Posted
Firstly I am so sorry to hear your family has been through this.
I am a younger heart patient 42 years of age.
I had a heart attack and put on Bisoprolol two years ago.
My cardiologist is very happy with heart progress young and able to rehabilitate well. The first little while went fine - motivated. What went on to happen has not been acceptable! Severe severe insomnia 3 nights in a row without sleep, falling a sleep for an hour then wake up screaming, breakdowns, yelling screaming at my family out of frustration, chest pains feeling awful, nervouseness, adreanlaine rushes, it ruined my life, work everything!
After 18 months I finally got the cardiologist to semi admit bisoprolol causes sleep disorder and nightmares, breathing difficulties. I didnt need it while trying to recoup from the heart attack I am very lucky that my heart function has rehabilitated to some extend and I am healthy! I thought I was on a verge of another heart attack I felt so awful. None of the doctors would have word of it! They just put me on tables for mental health that has increased my weight back up after working hard to loose it.
It has been an awful road! The cardiologist has kept me on bisprolol medication because it was the one targeting my heart function the best and needed to be on it. he has just recently said that there are two other that I can try Nebliet and Atenolol its a risk but he is happy now we are at this stage to allow me to try. Well just watch the vitals closely that the other beta blockers work.
Oh good luck to everyone! We are our own advocate and we must not tolerate this.. Its not fair.
And for me when no one believed me it was actually the worst! I just wanted someone to believe or admit this medication could do this! and help me make the changes I was demanding instead they through I was ready for the psychology ward
Mardi Alison_wasNacho
Posted
Firstly I am so sorry to hear your family has been through this.
I am a younger heart patient 42 years of age.
I had a heart attack and put on Bisoprolol two years ago.
My cardiologist is very happy with heart progress young and able to rehabilitate well. The first little while went fine - motivated. What went on to happen has not been acceptable! Severe severe insomnia 3 nights in a row without sleep, falling a sleep for an hour then wake up screaming, breakdowns, yelling screaming at my family out of frustration, chest pains feeling awful, nervouseness, adreanlaine rushes, it ruined my life, work everything!
After 18 months I finally got the cardiologist to semi admit bisoprolol causes sleep disorder and nightmares, breathing difficulties. I didnt need it while trying to recoup from the heart attack I am very lucky that my heart function has rehabilitated to some extend and I am healthy! I thought I was on a verge of another heart attack I felt so awful. None of the doctors would have word of it! They just put me on tables for mental health that has increased my weight back up after working hard to loose it.
It has been an awful road! The cardiologist has kept me on bisprolol medication because it was the one targeting my heart function the best and needed to be on it. he has just recently said that there are two other that I can try Nebliet and Atenolol its a risk but he is happy now we are at this stage to allow me to try. Well just watch the vitals closely that the other beta blockers work.
Oh good luck to everyone! We are our own advocate and we must not tolerate this.. Its not fair.
And for me when no one believed me it was actually the worst! I just wanted someone to believe or admit this medication could do this! and help me make the changes I was demanding instead they through I was ready for the psychology ward
LuckyPenny1 Alison_wasNacho
Posted
What a nightmare experience for you all but, so glad that there's been a happy outcome. I've been on Bisoprolol since Sept 2011. Thankfully, I've been okay with them, just feel tired and relaxed all the time.