Information is not correct!
Posted , 7 users are following.
I am extemely concerned by the information listed regarding interstital cystitis on patient.info. The information is factually misleading at best, and worst it is simply wrong in many places. Although the site does state that IC is not an infection, the information given is confused with urinary infections repeatedly.
Intersitital cysitis may occur in some people as a result of their bladder lining being damaged by infection- but this is not true in all people. The information regarding 'proper cleaning' to prevent infections is pointless and insulting to IC sufferers.
And worst of all this site suggests cranberry juice will help your symptoms, when most likely it is one of the most agrivating things you can drink with IC.
I understand that everyone with IC is different. If you have or think you have Interstitial Cysitits i would recommend checking the information on another website. I have IC myself, and am a memeber of several support groups. It makes me angry that such a debilitating condition is still so misunderstood here in the UK. I was lucky, my syptoms started very suddenly while i was studying in the USA for a year (where IC is much better understood)- and i was diagnosed very quickly.
[color=blue:077afa53bb]PUK Comment: The Interstitial Cystitis article is going through a review just now and we have posted your comments (and reply below) for the author to take into consideration.[/color:077afa53bb]
1 like, 16 replies
julie01285 Guest
Posted
I stopped when urologist also pointed out amount of sugarin it .Have also noticed that NICE guidance does not recommend it .
When has a symptom been classed as a condition /disease? As it can relate to spina bifida occulta [ NB My case] multi infart dementia [ late Mother] why is it [ the problems ]are not acknowledged by NHS & charities as a disability .They are regarded as Low Priority.?!