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I am recently diagnosed with RA but I am only on pain killers. I was told I was going to be put on methotrexate but I wanted to think about it. I have been going to the doctor for over 4 years with various symptoms but was diagnosed about six months ago. I can live with he pain at the moment but for the pass two weeks the skin on my hands feel as if they are scalded, is that ? Sometimes i feel so hot and I feel exhausted. I had bloods and was told my whatever is so high. I have been trying to make an appointment with the rhumetoid nurse but there is only one and she is part time.
i am so sorry to go on but just feeling so frustrated. Because I don't have any obvious signs at the moment people think there can't be much wrong.
thanks
1 like, 9 replies
EileenH yvonne_79570
Posted
RA is what is called an autoimmune illness - your immune system doesn't recognise your body as self and is attacking the joints and causing damage, inflammation and pain. The sweats and fatigue are part of that. They won't necessarily go with methotrexate but the long term problems should be reduced if it works. If not they will try something else. Methotrexate can take a few months to work - so it isn't much use leaving it until you can see things actually happening.
yvonne_79570 EileenH
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Buckeyes yvonne_79570
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gail32047 yvonne_79570
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Have you been refered to a rheumatologist? 6 months is a long time to go without any disease management. If the 'whatever' that's high is CRP, that measures the amount of inflammation in your system and is a marker for how active the RA is. Fatigue and fever is the result of high CRP. Your skin may hurt because your immune system can attack that in RA. It doesn't limit itself to joints. You need to get some help asap. There are drugs that can stop RA in its tracks and yes, some of them have nasty side effects but RA has even worse ones. Methotrexate is the most effective if you can handle the side effects. You must take folic acid with it though and stay out of the sun. Steroids have nasty side effects too but they get the inflammation under control in a matter of days. There isn't any easy solution but 'living with the pain' is not an option. This thing is damaging your body and any damage already done to your bones will be permanent. You MUST get some action on this.
If you are really determined not to use drugs, there are some reports of good results on this site from changing your diet. However, some cases of RA are severe. The high 'whatever' may be your anti-body levels. That measures how determined your immune system is to take you apart. It makes anti-bodies against what it attacks so lots of anti-bodies against you is bad.
With RA its important to get on the net and find out what your blood test results mean. It will help you to make wise decisions. A personal example;
I was diagnosed at the same time are an aquaintence of mine. We both had high anti-body levels. He opted to go 'the natural way' and not take the drugs. I started on the drugs ladder, which took 5 years to get the best combination for me. In the same 5 years his condition got steadily worse and he is now quite crippled, especially in his hands. He has started taking the drugs but the damage cannot be undone.
Get as well informed about RA as you can and insist that your GP sends you to a rheumatologist doctor as soon as possible. This is not the job for a nurse.
yvonne_79570 gail32047
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Buckeyes yvonne_79570
Posted
EileenH yvonne_79570
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When you get a response here make sure it applies to the health care system you are in. In the UK, the NHS will supply your medication - but you can't just go straight to something like Enbrel, you have to work through a standard list and can only progress to the next as one doesn't work for you for whatever reason.
Keep trying to get hold of your specialist nurse.
manda1030 yvonne_79570
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Rowbirdie yvonne_79570
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Yes- the fatigue and temperature go with it. Plus sometimes lack of appetite and depression.You must be feeling rotten if you are in so much pain. The NRAS website can give you a lot of info on all aspects of this disease so I really recommend reading it.