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Information/support and a specialist in the uk!

Posted , 3 users are following.

leah2289
leah2289

Hi,

I am looking for reliable information and support about achalasia in the uk. I have been able to find alot of testimonies and personal stories which are very helpful in working out different options to cope with the day to day complexities of achalasia, but am wondering if anybody knows of any reliable research about the success rates/prognosis/outcomes for the different interventions/surgeries.

I am also wondering if anybody knows if there is a surgeon/specialist within the uk with an interest in achalasia and recent experience in its treatment. I understand that achalasia is very rare, but would like to know if there is anyone in the uk that has maybe dealt with it more than a general gastroenterologist.

Regards

0 likes, 3 replies

3 Replies

  • AlanJM
    AlanJM

    Posted

    You could try the Oesophageal Patients Association on 0121 704 9860; or surgeon Majid Hashemi at University College hospital.
  • janine_52180
    janine_52180

    Posted

    Hi, wondered if you contacted this support group and if so found them useful as I have been desperately looking fir one too. Please let me know as maybe we can set up nor.

    Janine

  • AlanJM
    AlanJM

    Posted

    These are the details of the meeting this week:

    We have set up a meeting for anybody affected by achalasia in order to discuss issues surrounding the condition. It will be held on Thursday 12 December 2013 from 5pm - 7pm at

    3rd Floor, Brampton House

    Hospital of St John and St Elizabeth

    60 Grove End Road

    London

    NW8 9NH

    Majid Hashemi, an Upper GI surgeon will be there to answer questions and explain things. It will also be an opportunity for people to discuss their condition with others who suffer from the same thing. It is the first time we have done this, and we do not know how it will go, but we are hoping for an informal approach so that people can be at ease. And we will be guided by those present about any future meetings.

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