Injection advise
Posted , 3 users are following.
Diagnosed May 17 B12 85 B9 1.2 and Vit D 19 . So stated injections got to 7 started to get sick , so stopped . Also had iron infusion and take daily folate.
End of June B12 1400 hundred .
Last week bloods done B12 320 folate 23.
The loading for me was no silver bullet and now I feel worse.
Do I give myself another shot
Do i carry on with folate .
My GP and me had massive row , due to Hospital flagging up anaemia late 16 . When I ask was told impossible blood 02 / 98!percent.
Yes I'm damaged central apnea , restless leg , planter reflex gone massive pain and weakness . Had nerve test done waiting for results. I feel they all hoped I'd be like a spring chicken after 3 months well I hoped so too
1 like, 6 replies
Dena58 sofa_bear
Posted
B12 count in June is not accurate because you were receiving injections. The active B12 number is what mattered.
I wish you godspeed in your journey to managing this difficult illness.
sofa_bear Dena58
Posted
How do you find out about active b12
Dena58 sofa_bear
Posted
I have a doctor that is very open to saying this was not a subject touched on very much during school and training. He has saved my life and is allowing me to help mange my treatments. Most doctors will not do that.
clivealive sofa_bear
Posted
It is not uncommon for some symptoms to appear to get worse before they get better as the B12 starts repairing the damage done to your nervous system and your brain starts getting multiple messages from part of the body it had "forgotten about" or lost contact with.
I sometimes liken it to a badly tuned radio on which you have turned the volume up high trying to catch the programme you want when all of a sudden the signal comes in loud and clear and the blast nearly deafens you.
A lot will depend on the severity and longevity of your B12 deficiency as to how long before there is no further improvement or recovery. Some symptoms will "disappear" quite quickly whereas others may take months or even years. There is no set timescale as we are all different.
There is a complex interaction between folic acid, vitamin B12 and iron. A deficiency of one may be "masked" by excess of another so the three must always be in balance. . Folic acid works closely with vitamin B12 in making red blood cells and helps iron function properly in the body.
You don't actually say but that you have a diagnosis of P.A. as Dena says "you can improve it with ongoing treatment. ignoring it can be fatal" so you must carry on with the B12 and Folic acid..
Do you have any idea why your levels got to be so low in the first place? .I am not a medically trained person but I've had P.A. (a form of B12 deficiency) for more than 45 years.
I wish you well
sofa_bear clivealive
Posted
Thanks Clive,
I have conflicting answers Hospital call it PA associated with my connective tissue disease .
GP calls it a bit of difficiency related to lifestyle and diet and all my symptoms are associated with my autoimmune connective tissue .
Friday I was floored so I gave myself a shot yep things are better so I know the answer . I need to carry on with B12 injections . On Tuesday I'll speak to the hospital for prescription or buy online .
When I loaded in June vitD and Folate was not identified only late June . Only started folate second week July and vit D infulsion mid July .
Yep all takes time to work and imject B12 every other day till I feel better is I feel the best route.
Plus find GP who does not talk out of what he sits on.
clivealive sofa_bear
Posted