Inner ear spasm

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I'm 18 years old and for about 5 years I have tinitus. I noticed that he appeared approximately around time i was enrolling in high school.I was very worried and had huge stress about it,but i got in.Before i got tinnitus i didn't go to concerts or been in very loud environment.In the beginning,tinnitus was like rattling in both ears, but unfortunately it was not the only problem that I noticed, in right ear I began to feel the vibration, or some kind of spasm like the feeling when our eye twitch, with that sensation being in the ear, but only for certain sounds such as running water, vacuum cleaners, traffic, fan ... Around that i have noticed one more thing that was with tinnitus and vibrating/spasms from the beggining just not so often at first.Sensation of suddenly going deaf for about 1-2 seconds then very high-pitched sound would come through,that lasts for about 30 seconds in wich sound slowly fades and come back to previous tinnitus.It would happen once a week. In that period I visited a large number of doctors who did not know what vibrated or did not pay enough attention to it, and as for tinnitus, tests were done in the form of audiometry and tympanometry that did not show any sign of hearing impairment,also i done all other testing and everything with my ears was fine,at least that is what the doctors said.No medication was given to me during that period nor any therapy. I was straight A's student in the elementary school,that was followed up by a clear decline in concentration, grades, success in high school,i was mentally better then now but i was still depressed.Tinnitus was worse then before some whistling sound started,my ears were more sensitive to sounds,that sensation of sudden hearing loss was happening more often,both of my ears started vibrating,but not like before,this time in such random times,they were not provoked by sound,even though my right ear remain sensative to sounds listed above.What would be the trigger for this vibrating / spasm, which I noticed is yawning,burping and hiccup.Sometimes it lasts for a few seconds, a few spasms occurs and then stops.These spasms do not have any rhythm and are not related to pulse. They usually last much longer for a few days without interruption, in the sense of a series of spasms,several of these contractions happen and then for example 10 or 20 seconds pauses, although it all depends, then the next series of these spasms happen and so on,can last for days. After the period of high school and enrollment at PMF faculty, chemistry course, or to be more specific after i come back from vacation, the situation is drastically worsened, tinnitus is constantly changing both in terms of strength and modulity, in the morning it is very strong, a great number of sounds in the ears at once, buzzing, whistling, wind sound, rumbling ... sound sensitivity intensified, vibrating very often, also those moments of  sudden deafness are very often 10+ times a day.I'm very depressed, more than before, suicidal thoughts are present because I do not know how much longer I will have the strength to withstand, I lost my appetite, I do not go to college, I do not go out at all,I lost contact with my friends, I sleep very badly.I really went to all doctors private or state, only thing i was diagnosed with hypercausis since august this year,but no therapy was given.I have also tried, of course, alternative methods and drugs, but there is no significant change. I read that there may be some surgery to remove this muscle, but I do not know where i can find someone for that. I'm scared and I feel very helpless .

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  • Posted

    Hi aleksandra57278

    We note from a recent post which you have made to our forum that you may be experiencing thoughts around self-harm. If we have misinterpreted your comments then we apologies for contacting you directly. But if you are having such thoughts then please note that you are not alone in this, and there are people out there that can help.

    If you are having these suicidal thoughts then we strongly recommend you speak to someone who may be able to help. The Samaritans offer a safe space where you can talk openly about what you are going through. They can help you explore your options, understand your problems better, or just be there to listen.

    Their contact details are on our patient information leaflet here: https://patient.info/health/dealing-with-suicidal-thoughts, which also offers lots of other advice on how you can access the help you may need.

    If you are having such thoughts then please do reach out to the team at the Samaritans (or the other people detailed in our leaflet) who will understand what you're going through and will be able to help.

    Kindest regards

    Patient

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  • Posted

    Hi Aleksandra

    I have very similar symptons to yourself and have tried to cope for the past 6 months or so. I agree that when it is bad various thought go through my head but please don't think of self harming or even worse. There are many out there like us and somehow we all find a way of dealing with it. I find that talking to someone else who suffers a great help. Don't give up because one day you will find a way of living with it and of course there is always the possibility of being cured.

    All the best

    Robin

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  • Posted

    Hi, you are much stronger than you think, it does become more tolerable, I've had it for 23 years both ears, started like a jet engine, plus IBS plus Rheumatoid arthritis, try to find people to talk to those who understand, many people know how you feel, I've read Beethoven felt exactly the same with his Tinnitus, the same thoughts you're describing.

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  • Posted

    Aleksandra,

    I find that diet helps mine. Sweets affect as well as stress and tiredness. Keep a journal and c what sets yrs off. We may not have a cure yet but we can learn to hopefully manage. Iv read where deficiencies such as magnesium can effect the T as well. Maybe have a blood work up done to c if u Hav any deficiencies. At least all this can keep yr mind busy which helps as well. Research...praying for u strength..

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