Insomnia and Legs feel like they are turning to stone
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I have this severe pain in my legs, its always starts at night. I have an expensive Sterns N Foster Sleep Bed and it doesnt help. I invert my legs, curl up in a ball, its just so so bad. My General Dr. doesnt get it, He put me on Gabapetin but it like a bandaid on something that needs a thousands stiches. Im in severe pain, only sleeping every other night and that because of the exhaustion. I lay awake writhing in my bed moving from room to room , bed to bed trying to not wake everyone in the house. I have tried So many things, tintures, B12, Pain sprays from a chiropractor, Tramadol which wakes me up more and requires at least 2 to even begin to touch the pain, combined with Gabapentin.
To describe it, it feels like the insides of my legs are turning to stone, they feel heavy, painful. Im not overweight either. I get up and shake my legs which gives some relief. It feels like my nerve ending are outside my legs, everything hurts. Eventually it takes a toll on my heart, my physical body everywhere and my mood.
I was told its Neropathy, no DUH! I just want a solution. There are nights you just wish you could dismantle your legs to stop the pain but thats really just me venting my pain. I love my long legs but I wish I knew what would end this pain and suffering.
Can anyone relate? What have you tried. Im just a girl in Florida who needs some relief. Wow this is chronic and ridiculous and why or what brought this on!!!!
2 likes, 28 replies
cheri29129 sherry81017
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sherry81017
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I will give it a try. i do drink lots of water and keep Auquafina by my bed drinking several volumes a night.
Tumtum1963 sherry81017
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However I'm really sorry that you are going through the mill. I have come out the other side with my small fibre neuropathy now and the pain has almost lifted but has been replaced by numbness - which feels comparatively blissful apart from the way it's affecting my balance/ equilibrium.
I never found a type of pain relief that worked for me - in fact Gaberpentin and Cymbalta both made me very ill and were hellish to get off.
But steroids and antiinflammatories were the best. They really helped but unfortnately I couldn't stay on them for other reasons. What this showed me was that the cause of the terrible stone pain was inflammatory in nature and was triggered by my defective immune system. I know this because I had rheumatoid arthritis for three years and the neuropathy started shortly before this disease. Also I have inflammation in my blood which is still there long after the joint pain and swelling has eased.
I had a lumber puncture over a year ago which showed there is an inflammatory process occurring in my system. My rheumatologist won't properly take this on board as his responsibility to treat and the neurologist bats it back to rheumatology. I found not knowing the cause the worst thing but now that I've worked out that it's been triggered by an underlying inflammatory process I feel better able to manage it myself by researching foods that have anti inflammatory properties and telling myself that the pain is a blanket and I must let it swaddle me until I eventually fall asleep.
I think for me it was the uncertainty that was most unbearable so perhaps if you can research and get to the bottom of yours too then the pain will seem less unbearable and lonely. Mine affects my hands and mouth too now and this does get me down a lot - especially when doctors imply it's all in my mind. I don't put up with this though because I know my blood shows high levels of inflammation.
The reason it is worse at night is because the brain sends and receives signals through our tendons and we need our extremities for fight of flight. So when the tendons are still the signals from our brain to our nerves transmits more easily. I don't know if I've expressed this very well but it made a lot of sense to me and gave me comfort during the night when someone on a neuro forum explained. Research research research is all I can offer by way of pain relief.
sherry81017 Tumtum1963
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Tumtum1963 sherry81017
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"All truths are easy to understand once they are discovered; the point is to discover them."
Galileo Galilei
sherry81017 Tumtum1963
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sherry81017
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kenny_02267 sherry81017
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I'm not sure how yours started, but basically one morning I woke up and my life changed and it seems that it may never be the same.
I can't explain the discomfort and pain to anyone that hasn't experienced this seemingly ever changing pain. They always tell me that it's probably just stress and nerves.
I have always been an outdoor enthusiasts and very physically active person. I am retired from the fire service with 30 years and thank goodness this didn't happen to me until 5 years after retirement.
It really scares me to think of possibly getting to the point that I'm completely immobile.
Quality of life is so important!!.
My problems started out in my feet and hands and since has moved into my forearms and my calf muscles.
After I realized this is one of those things that doesn't just go away after a round of antibiotics, I started to become depressed and just started getting up and setting endlessly on the sofa.
Believe me, 3 months of that will take it's toll on you fast. My muscles started to Athrophy, and my entire body started to ache while moving.
Finally a couple weeks ago I decided to fight back and started walking again. Back in early December when this hit me, I thought if I exercised and walked, it would improve, but walking killed my feet after walking, so I stopped.
So far this time the walking tires me out but my feet doesn't hurt as bad as they did. I have found that activity, even though it hurts, it hurts less than when I set all day.
Do you experience muscle twitching after you have been on your feet for a period of time?
I like you and many others dread the nightime, because I'm all over the bed.
I have found that stress is at least a factor when I'm in heavy traffic and my entire body responds by feeling like pins and needles and light electric shock feeling, once I'm through the traffic, it eases up.
I recently traveled from San Antonio to East Tennessee, about 15 hours, and for three days after I hurt all over.
I did try 6 weeks with a Chiropractor and it seemed to help a little. From my waist down, he said I was very twisted and I have a pinched nerve in my lower spine and my C1 in my neck was badly misaligned.
I was really hoping the Chiropractor would help me, and maybe my feet at least doesn't burn like they did, but still ache on the bottom and feel like pins and needles.
I assume just finding the right combo to ease the pain and discomfort is the key. I truly never know from day to day what I'm going to face, pain wise.
In my wildest dreams, I never thought I would come down with a Neurapathy problem.
I have read a million articles and medical things about hundreds of diseases that all this could be. I have a few symptoms of many, but not all symptoms of any.
I'm not sure if this is good or bad, but Other than the nerve pain, I have good energy and my appetite hasn't faltered at all.
I would just give anything to feel normal once again, but something tells me, this may be with me until the end.
I am very thankful for the 60 great years I've had on this earth, and hopefully we will all eventually put and end to this nightmare.
I sure hope you find the remedy Sherry to make you comfortable again. Great health is Priceless!!!.
Florida is an awesome state with some beautiful beaches. Nothing like the ocean. It has a soothing effect on me.
Get well!!!
sherry81017 kenny_02267
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JanSpencer kenny_02267
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I had a brain MRI, nerve conduction studies, immunological serum screened and eventually an MRI of my entire spine which showed up 3 bulging discs. I was told that all of my symptoms weren’t typical of bulging discs and I was given aqua therapy and cortisone injections as well as Gabapentin.
Nothing helped and I felt as though the doctors thought I was a fraud. When I was once again referred back to my neurologist, instead of my usual doctor, I saw a professor who was hugely interested in my symptoms. I was sent for something called a potassium voltage test and a MAG test (antibodies against myelin associated glycoprotein) and BINGO we got a diagnosis.
I have a neuromyotonia (sometimes called Isaac syndrome) which is a peripheral motor neuron disorder, which isn’t curable but certainly treatable. I take Phenytoin and low dose of Amitriptyline which has made a huge difference to my life.
Funnily enough, if I look up the classic symptoms of neuromyotonia, they aren’t typical of my symptoms and because its not a well documented disorder and my symptoms didn’t fit, I went a long time before a diagnosis.
Think on, when they test you for something and come up with a negative, it just means they’ve eliminated something. They owe it to you to keep going until they find out what it is and if this means nagging them for an answer, then nag away…its your body, you have to live with it.
sherry81017 JanSpencer
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kenny_02267 JanSpencer
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I never know from day to day what's going to happen. I have been again walking for a couple weeks now. I noticed the last few days that my feet doesn't seem to ache so bad, but I say that lightely, because it can snap right back.
It seems now that if I stand for a while my lower back muscles become so tight, I can't hardly stand it. That comes and goes too.
Now when I hear someone complaining about a sniffle or a belly ache, I just think that if they only knew. Chronic pain and discomfort is a life changer. It's like your worst dreams.
I will continue on as long as possible. The occasional day or moment you feel some better, that gives you hope and keeps you going.
When all this mess started, I had bad burning and tingling in my extremities, then that has subsided, then shooting pains and aches started, but That has improved, but know I have the extreme tightness in the lower back.
It does seem that the walking has helped a little.
Thanks again Jan!!!
Jmac2 sherry81017
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sherry81017 Jmac2
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Jmac2 sherry81017
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Jmac2
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sherry81017 Jmac2
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sherry81017 Jmac2
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sherry81017 Jmac2
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