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Insomnia , sweats, athritist, atosu

Posted , 3 users are following.

trisha87499
trisha87499

after getting my gallbladder rremoved in 2012, all I've had is one problem after another, then the the doctor casually mentioned after we get your diverticularitist sorted then we can look into your fibromyalgia!!! Pardon? I said, I'd had it for years and was never informed. I have all classic signs now I've I've done my homework, mainly through this website, so thank you. I went to an atos appeal just there on Wednesday and there was a member of the DWP there fighting their side. At one point he said, the doctor says that the doctor has said that the athritist in my knees should not be causing me as much pain, well I turned to him and asked did he even know what fabromyalgia was and that if he were to feel pain pain, then I would feel it maybe 4 or 5 times worse, he rolled his eyes, and thankfully for his safety the judge butted in and told him he was being highly unprofessional so high five to the judge. I took really bad depression on Monday 29th so much so I thought about taking my own life, as living with this illness is like being in your own bubble and you can't explain it to anyone who has it. Sorry it's all doom and gloom but that's me up early yet again. I have no energy whatsoever, and don't know how long I can live with this.

0 likes, 4 replies

4 Replies

  • kaz_40
    kaz_40 trisha87499

    Posted

    Hi Trisha87499 That is shocking for the DWP person to act in that way, shame on them but not surprised by their attitude, but well done to the judge for stepping in. The problem we have is we arnt believed you cant see pain so people just think we are putting it all on and dont believe us. Ive found with fibro that if your ill with something else fibro makes it 10x worse.I have arthritus in neck and back so I know what your going through and the pain your in. having fibro makes that pain 10x worse. But getting people to understand that your just banging your head against a brick wall as no listens or cares. They want to try living in our shoes if only for a day then they would know.I know where your coming from feeling like you want to end your life. Ive been their on several occassions thats how fibro gets you. its such a horrid condition to deal with made worse by people not caring and being made out to be like liars. since being diagnosed in 2014 ive just been hung out todry and left to get on with it. So I try to manage it myself get through each day as best I can. see if your area has a support group you could go to, plus you have us on here to sound off to. as we all know what its like living with fibromyalgia so your never alone on here. take care sending you a big hug
  • christine26761
    christine26761 trisha87499

    Posted

    Poor you trisha,, really feeling for you..gentle hugs from Australia.,thats why im up..its 7.30pm here...its just awfil that no one seems to kniw anything at all about fibro..I would google a good

    reputable site and do your own research..get informed...there's

    so many different symtoms .no body on here gets every symptom, but we all have plenty of them and as this is an autoimmune issue we usually have more than one, i have Sogrens,Sydrome,Cronic Fatigue Syndrome-CFS) , Asthma, Psoriasis and Arthritis

    others have many too..the CFS most people have too..There

    really is not enough information out there for the public to try to

    understand let alone the medical profession..i really just want to encourage you a trisha, ive gad this all for 30 odd years now..and there is light at the end of your tunnel....it goes into a sort of

    remission...it does come back with a vengence too from time to time..but never stays..fortunately...but the worst thing for it, is

    stress..fibro loves it..so try not to stress....yes i know thats hard to do.. .support of family and friends it your workplace if you can still wotk..support is very crucial..so if you can maybe printout some info for them to understand, that helps to..being on the right medication was the best for me..,and there we go again aswhat works for one doesnt mean it will work for everyone even the right dosage.Seeing a Rhumatologist is usyally the orifessiinal that ruagnises you and orescribes the rugh ned, this can taje months to get it rught thou..it took me 3-4 monthsI really feel for you trisha., try to stay as positive in such a negative situation as you can, it will help..you will get lots of help on this blog, help that comes through years of personal experiene...also heaps of compassion and empathy..so please never feel like your a bother to us., we all help each other cope..esecially when things are bad..please excuse any wo4ds that are mispelled..i tend to hit the wrong key at times..lol...hooe you find help tisga..be blessed, have a lovely day..xx😘😘

    • trisha87499
      trisha87499 christine26761

      Posted

      Thank you for your kind words, it does help to talk to others like myself. Everyday seems to bring something new, i think it was the way I was told just so matter of face, 2 years after he diagnosedme. In my opinion doctors have no time or respect for people like us, when my gallbladder was removed they also messed that up, they damaged one of my bile ducts, which takes me into hospital every now and again, but of course they don't want to admit responsibility, I get so frustrated with all the doctors, because last time they don't talk to you like a human, just a problem.
    • christine26761
      christine26761 trisha87499

      Posted

      Be strong trisha..,we are really the only ones who truly understand, what its like, .unfortunately, not even our loved ones really know, even though they put up with sooo much from us, my husband is such a blessing,-my hero, his love and care is soo unconditional but he even says: i have no idea of how much it really hurts and hearing that is pure gold to me.,hope you have a good sleep, be blessed trisha and have a lovely day..😍😍😚
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