Intermittent pain in lower right abdomen - endometriosis?

I am very sorry about your daughter. She is lucky to have you in her corner.

Endo presents in many different ways. Also, pain can be "referrred" to odd locations. i don't now recall the details (it was the '70s-'82]) but i remember docs sometimes saying certain pains of mine were referred from elsewhere. Pain on the right side could be from there or it could be something on her spine, or it could be from her left ovary.

There is only one way to be certain about an endo DX: laparoscopy.

I can't speak to the meds.

I'm very sorry to hear about your daughter. Typically the only "endo" drs can see on an ultrasound is an endometrioma, basically a mass presented as an ovarian cyst until a laparoscopy makes a final diagnosis. So maybe it's a good thing the ultrasound is clear? Unfortunately many gynes dont think endo unless it runs in the family they want to rule out everything else which is good but makes the diagnosis difficult to obtain. As for the pain, I have stage 4 and grow the masses so my pain is constant, literally never goes away and I've been through 13 different pain medications to help. I'm in a clinical trial for endo pain right now. the only other drug for endo pain on the market is called orlissa. I dont know how well it works. I've also been told by one of the 5 gynes I've seen for endo that contraceptive pills may help with the pain because the hormones are controlled better? endo can attach itself to anything in the body typically around the reproductive organs. for me getting a diagnosis was easy I had a 10cm cyst on my ovary that needed removed so they sent it off to path and I got my diagnosis. for others with stage 1 it's harder to diagnose and treat. the heating pad is what I cant live without. I've also begun sleeping with a pillow between my legs to help with the leg pain I get on the side I had my mass. as for the pain urinating I just go more often as having a full bladder makes the pain worse. If everything keeps coming back clear the only other thing to check will be an exploratory laparoscopy where the drs just go in and look around for anything out of the ordinary. this journey is going to be long and painful and I'm very sorry this is happening to your daughter. good luck. I hope this helps.

I'm very sorry to hear about your daughter. Typically the only "endo" drs can see on an ultrasound is an endometrioma, basically a mass presented as an ovarian cyst until a laparoscopy makes a final diagnosis. So maybe it's a good thing the ultrasound is clear? Unfortunately many gynes dont think endo unless it runs in the family they want to rule out everything else which is good but makes the diagnosis difficult to obtain. As for the pain, I have stage 4 and grow the masses so my pain is constant, literally never goes away and I've been through 13 different pain medications to help. I'm in a clinical trial for endo pain right now. the only other drug for endo pain on the market is called orlissa. I dont know how well it works. I've also been told by one of the 5 gynes I've seen for endo that contraceptive pills may help with the pain because the hormones are controlled better? endo can attach itself to anything in the body typically around the reproductive organs. for me getting a diagnosis was easy I had a 10cm cyst on my ovary that needed removed so they sent it off to path and I got my diagnosis. for others with stage 1 it's harder to diagnose and treat. the heating pad is what I cant live without. I've also begun sleeping with a pillow between my legs to help with the leg pain I get on the side I had my mass. as for the pain urinating I just go more often as having a full bladder makes the pain worse. If everything keeps coming back clear the only other thing to check will be an exploratory laparoscopy where the drs just go in and look around for anything out of the ordinary. this journey is going to be long and painful and I'm very sorry this is happening to your daughter. good luck. I hope this helps.