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Hello, after quite an ordeal and several months of messing around, i have been put on a self dilation regime after my recent second urethrotomy, i was just wondering what sucess people have had and how they found it, i have done two dilations so far, first one was painful but i went into the bladder to be sure I'd gone through the bulbar stricture, and that was with a lofric origo, but the second dilation with a lofric dila-cath which i didnt go into the bladder was fine after taking a painkiller beforehand, i went until I felt it pushing the sphincter as my stricture is 15mm before the sphincter so as long as I feel it at the sphincter i know I've gone through it.
I'm on 18f / 6mm ones.
Iv heard about some people finding it very successful and some finding it useless. As long as it delays the need for more surgery it's a good thing I suppose and I'm willing to do it, i know it's all down to compliance too. I'm on twice a week for first 4 weeks then once a week from there on.
part of me doubts that's frequent enough as I had a 4mm catheter which had been forced through it when i had an emergency visit when it fully sealed up 3.5 months after my first urethrotomy, and it was taking too long ( had waited nearly 3 hours in agonising pain with close to 2 litres inside by the time it was drained ) to get a theatre sorted for a suprapubic catheter, i had that catheter removed when i was changed to a suprapubic one anyway a 4 weeks later, and the 4mm hole had resealed within 10 days, that's a 2mm contraction from each angle, so if I dilate to 6mm, it could contract enough in 7 days to make it nearly 4mm and stop the catheter dilating. I have some 16f and 14f caths as back up incase it gets to that but hopefully it won't.
So if anyone who is on ISD could give me some advice and personal experience opinions and info it would be helpful, thanks.
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