Posted , 5 users are following.
My 17 year old daughter who has had no previous medical problems has had problems now for coming up to 3 years it came on all of a sudden constant severe nausea, headaches, lightheadedness shes had 3 bad episodes of severe stomach pains and sickness including 1 hospital admission as was suspected appendicitis but only found mesenteric adenitis when scanned then a year later also blood and mucus in stools and constant stomach pains that is made worse by food/liquids so now is fed by ng tube which doesn't help at all apart from keeping her weight stable as went down to 5 1/2 stone but she is still really weak to the point of being bedbound and has to use wheelchair if has to venture out to appointments she has never had a good day in the past 3 years always suffering she has had numerous test 3 endoscopes, 1 colonoscopy, capsule endoscopy, mri, ct, scans, stool samples and a full thickness bowel biopsy all blood tests come back normal only things which has shown up is a long transverse loop that goes into the pelvis, stool samples come back with high calprotein (701 649 113 ) couple ulcers, melanosis coli(never used laxatives) and the capsule sat in the duodenum for 7 1/2 hours, took 5 weeks to pass also had 2 patency capsules that was at the end of the ileum 24 hours later, nothing explains why the capsule was held up in the duodenum. Her consultant suspected crohns but that has been ruled out then she suspected intestinal failure and was referred to another specialist who said it seems like dysmotility after reading up on her and recommended another specialist which we are waiting to see. I was wondering if anyone can help with explaining intestinal failure and dysmotility as we have looked on the Internet and nothing seems to explain it enough or if anyone else has any ideas or experienced something similar.
0 likes, 5 replies