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  3. Polymyalgia Rheumatica and GCA

Into another flare.

Posted , 18 users are following.

patti52108
patti52108

I have been struggling with pmr for 5 years. Have been to 2 differant Dr.s both putting me on very slow taper and it keeps coming back. I have to suffer for mths. before my blood work varifies my condition. Ive been on 3 mg since mid Jan. and have gradually gotten worse to the pt of being miserable now. Every time I hear a speech about the dangers of long term pred. use. Just dont know what to do anymore. I dont think anyone knows what it is like unless they have been through it. I just turned 61 and have always been very active and healthy. Right now I feel 90 . Waiting for a call back from Dr. due to C19 office closures.

0 likes, 33 replies

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  • lynn55953
    lynn55953 patti52108

    Posted

    thats a long time to be have PMR. i have only had it for 5 months and that seems like forever to me. i hope i dont have it for 5 years! i am on 15 mg. of prednisone right now down from 45mg.

    • EileenH
      EileenH lynn55953

      Posted

      45mg is a very high starting dose for PMR - or did you have any symptoms that could have been GCA?

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