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I'm 2 years into a journey to try & find out what it going on with me. I have been having memory and concentration problems, which are worsening. I also have problems with word finding/mixing. My sleep is affected & I have insomnia and nighttime anxiety - which you could almost set your watch by & comes on from around 8pm. I also get bouts of fatigue and horrible irritability.
I also get pressure at the back of my neck and when bending over and some popping, blocked ear feelings (occasional). But NO headaches other than one major 24hr migraine 2y ago.
I had a head mri 18m ago which showed 'a degree of cerebullar slumping' and some descent of the cerebullar tonsils into the foramen magnum. They said I had Arnold chiari malformation and that it was congenital and should be symptomless.
However I'm continuing to worsen in my symptoms.
I have just had another mri and am now waiting for the results.
I'm just wondering, having done some research whether it is possible that I have intracranial hypotension or a CSF leak and that this is the cause of the slumping and not a chiari at all?? From what I've read it could be cause all of my symptoms, but the most common ones of headaches is missing - has anyone had any experience of this condition but without headaches?? Is this possible and if it is this is it easy enough to detect on mri??
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