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I have been diagnosed by two different neurologists for Intractable/Refractory Chronic Migraines.
30 female living in United States of America
had migraines since I was 10
did not start period until 12
Since I was a child, I took ibuprofen from 200 mg up to 1,000 plus mg; this drug worked for me up until 2013. I had never seen a neurologist until this year. I sought out last year through my general physican who referred me to one neurologist, but I was not able to because of the job had. (This job complained that I took too many days off for my migraines and seeking doctors.) I stopped seeing this doctor due to the change of insurance.
I stopped working Feb 2015 because the pain became too unbearable. I am the type of person who can tolerate pain, but my migraines did not cease. My pain levels daily level(s) 7-9.
This past April I sought out another general physican who referred me to a pain specialist and neurologist. This neurologist was not available until end of Sept 2015. I went to the original referral neurologist (from last year) and I paid out of pocket.
This neurologist diagnosed me with intractable chronic migraines without aura. She did not help me with any of the pain. She could not find anything wrong with me. She told me that ibuprofen only would worked for children and young adults.
I felt like I was not going anywhere with this neurologist; so I ended up seeing the second neurologist August 2015. This neurologist is my current one, and also has not helped me. I am up for a Botox evaluation in a couple weeks.
I am frustrated because my pain is daily and never ends. I stay in a cold, dark room lying down daily. I have A LOT triggers that I have become a hermit. I was an active person and now nothing.
The tests have all come back with positive results: no tumor, cancer, etc...ONLY migraines...I am glad to not have any fatal disease, but I am not a functioning person.
There is not a medicine that helps...I have tried mediation, physical therapy....nothing works.
Each staff and doctor dismiss me thinking I am capable of anything. It is extremely difficult to explain without being rude or aggressive. I do not know what to do anymore.
I know I am not the only migraine sufferer. I do keep a migraine diary and do my checklist daily to see if I caused a trigger, but I will still have a migraine.
light, sound, smell, temperature, and the obivous ones: stress, lack of food/water
Tests I have done:
MRA/MRI for brain
MRI for cervical spine
CAT scan for brain
Medicines I have taken:
Tramadol 50 mg, Acetaminophen/Butalbital/Caffeine 50-325-40, Sumatriptan 25mg, Amitriptyline 25mg, Topiramate 25 mg, Nodolor, Buspirone 15mg, Rizatriptan 10 mg, Propranolol 40 mg, Depakote 500mg, Prednisone 20mg, reglan, citalopram 20 mg, sumatriptan 100 mg, Medrol (Pak) 4 mg tablets in a dose pack, Trokendi XR 50 mg capsule, extended release.
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