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Invisible Illness

Posted , 6 users are following.

kaz_40
kaz_40

When people look at us, they say to us you look well? pity they cant see what is actually going on underneath  gentle hugs to all xx

1 like, 25 replies

25 Replies

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  • rebecca01586
    rebecca01586 kaz_40

    Posted

    It really is..my husband gets p*ssed at me for not being able to help out with housework and the kids. I try to tell him how I'm feeling but he will never really understand.
    • kaz_40
      kaz_40 rebecca01586

      Posted

      The only people that do fully understand is those of us that have it. Its a horrid condition made all the worse by people not understanding and not caring that goes for gps specialists family friends partners husbands. at least on the forum we have each other. I have in the past printed off information on fibro and given it out to people,also Ive taken my husband to drs appointments for my gp to explain things to my husband. he trys but he still doesnt get it. rolleyes take care gentle hugs xx 
    • rebecca01586
      rebecca01586 kaz_40

      Posted

      Yeah that's true at least we understand eachother. *hugs*
    • hope4cure
      hope4cure rebecca01586

      Posted

      That is almost abusibe. Perhaps it best to find a post from a medical web site Torino out and stick it on host nose to read. 

      I have had similar issues and I just stopped doing the thing that made my condition worse. I cannot take pain meds all allergic to .. So I have learned to talk about my issues and share what I can on forums like this rather than wear my family and friends out. 

      I hope things get better for you. I know that in my case chronic pain caused depression which on top of the negative attitudes made me feel worse. I take anti depressive meds and now I am happier accept my illness and can reflect a better attitude with my immediate family. Things are a lot better as my attitude did reflect on to others in my home, brought them all down with me. It's so true the wife does generally set the tone of the family. 

      Take care.biggrin

    • rebecca01586
      rebecca01586 hope4cure

      Posted

      Yeah sometimes I have to wonder what he would do if I have to be in a wheelchair someday. Would he still want me to do everything and get mad when I can't? I don't think I have ever been depressed in my life til now. It get depressing accepting I may have to deal with the pain the rest of my life..they have tried to give me antidepressants but they made me feel much worse. Only two things that really help is Physical therapy and pain killers..and today I found out my insurance won't let me have anymore pt visits sad idk wat I will do now.
    • Bee70
      Bee70 rebecca01586

      Posted

      Yeah, it's tough for us when we don't get support from our loved ones.  Have you tried CBT (Cognitive Behaviour Therapy)?  It's more of a mindfulness in our thought process.  I found this very helpful for me and has made me more of a confident person.  Ask you GP to refer you to a CBT therapist.

      Gentle hugs and don't give up. One day and moment at a time.  wink xx

  • hope4cure
    hope4cure kaz_40

    Posted

    So true Kaz. There are so many that suffer quietly and many who just go about their business knowing that each year they seem to become a little more reliant on others as things cannot be done in the same way any longer. We make adjustments to our limitations and I am grateful for what I have and can do! biggrin

     

  • kate21881
    kate21881 kaz_40

    Posted

    I know I'd love to show people how much pain am we are actually in.
  • christine26761
    christine26761 kaz_40

    Posted

    Absolutely Kaz....yeah....that's us, a bit like a river..looks really good and healthy on the top but underneath it can be filled with rubbish, murky and diseased..have a great weekend.:-)  xx be blessed
    • kaz_40
      kaz_40 christine26761

      Posted

      well put christine definitly muddy and murkey. hope your having a good weekend so far. take care gentle hugs xx enjoy your special day tomorrow xsmile
  • Bee70
    Bee70 kaz_40

    Posted

    That's what Fibro is......all on the inside. rolleyes
    • kaz_40
      kaz_40 Bee70

      Posted

      pity no one can see on the inside whats going on they may understand better? hope you have a good weekend hun take  care gentle hugs xxsmile
  • kaz_40
    kaz_40

    Posted

    Pity we couldnt turn our bodys inside out then people could see exactly whats going on, and what we have to deal with day in day out  gentle hugs to all. take good care of yourselves xx
    • Bee70
      Bee70 kaz_40

      Posted

      Totally agree with you Kaz

      Take care and hope you are chillaxing wink xx

    • kaz_40
      kaz_40 Bee70

      Posted

      cool very chilled at the min hun hope your chillaxing too. lovely sunny here take care gentle hugs xxxxsmile
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