Involuntary Movements

yes donna i get all those things alot and at the moment have the flutter going on!

:shock: :shock: :shock:

Scary eh? I was going to go to my GP as I had an episode of this, lasting about 12 months and they sent me for a 24 heart trace - A bit like a cassette player hanging off your hip Mmmmmm nice 8)

Over the 24hrs i had no irregular fluttering - Typical :evil:

Have you seen your GP or mentioned it to anyone? As if we arent believe as it is!

Donna x

I have the palps and the skips. I also had the ECG monitor for 24 hours but the tests were inconclusive. The dr gave me propranolol -(beta blocker) for when it is very tiresome, but I didn't like the side effects. However I am thinking of asking if I can have them again as they help me to chill out.

So reassuring to hear others having the same symptons as me.

Does anyone know what the connection is to the ME? I would love to hear your views.

Donna x

p.s Maybe my oracle of medical knowledge will know (Katie) :nurse:

well i have spoke to the doctor afew times about it but the problem is that i always go there for a million different things!they always say when it happens and to try and forget about it as m.e/cfs is systematic so you will get all sorts of problems(which dont help me)iv noticed my sisters asthma inhalers have been halping me abit tho anyone else tried that for it?

its very scary and my flutters and not being able to breathe has been really bad the past two weeks and even talking small words and eating has taken the puff out of me!i have just have to get on with it and stay as still as i can!

Hi there everyone

Well, we are certainly never short of things to talk about are we!

Yes, I too get both muscle twitching and heart flips (I always find myself taking my pulse after the latter - just to check I'm alive! :shock: ) I had an ECG and an Xray of my heart but all okay.

The muscle twitching was really embarrassing - luckily it seems to have subsided now. One side of my face visibly twitched - it was a really powerful twitch and pulled my eye right down (most attractive) and I was finding myself putting my hand over my face when with others.

The other twitch was in my right buttock :oops: for a couple of weeks - and I am now left with one nicely toned right buttock and one flabby left one - so I'm hoping that the left will start twitching to balance things a bit!!

Racing heartbeat and/or palpitations and visible muscle twitching are listed in my ME bible along with just about every other symptom.

Does anyone who also has fibromyalgia (?Donna and Alicia) find that they also have tingling hands and sometimes they get very hot and red??

Just wondered :?

Hope everyone is okay - and that Jay comes back soon - obviously that sidecar is taking longer to build than he thought! :lol:

Katie xx

Tingling Katie? Yes, definitely, but not so much the hot and red, except during a hot flush :tomato: (red face :lol: )

In the first few years of my ME, before I was properly diagnosed, I had episodes like you Matt - the heart racing and breathlessness. It is so scary when you don't know what is wrong and everyone is telling you there is nothing wrong and your body is just telling you different. I used to lie and plan my funeral because I was certain I had inherited my father's heart disease. It is a very lonely and scary time. But in time it did lessen as I got better.

I have never mentioned that I actually recovered quite well, I had about 75% recovery and was still recovering when my mum became ill and subsequently died. I spent 4 months helping to look after her and dividing my time between the home and the hospital, and later the hospice. I one point I said to my doctor "Surely I don't have CFS/ME. I wouldn't be able to do all this if I did." He explained about the surge of adrenaline that keeps us going, even to superhuman levels when we have to. And sure enough, once her funeral was over I crashed big time. I don't think I moved for 8 weeks.

Consequently I have never got back to where I was before she became ill. At a guess I would say I have 55 - 60% at best and I am learning to live with that. The stress of Mum's illness and death took away some of my recovery.

Just thought I'd like to tell you all that. :roll:

Thanks for sharing that with us Alicia - it must have been such a sad time for you - but also such a shame that you were never able to get back to the same stage with your illness. It really does show that stressful and emotional situations certainly take their toll.

So we all plod on trying to live our lives as best we can.:roll:At least the weather is warmer and we can all hopefully feel a little more comfortable.

I was taken out for lunch yesterday by a couple of managers from work, and I have now told them that I won't be returning - so I feel a bit sad about that - but not as sad as I thought. :? When they asked how I was I told them I was learning to live with the illness (first time I have said it!) and they both said 'Ahhh' - so I don't know whether that was what I wanted to hear or not. :? Don't know what I want these days!

I later had a e-mail from one of them and she said how well I was looking

but she had noticed my shaky hands. What! :shock: Didn't realise I had the shakes too. Great, that was all I needed to hear! People do say some funny things ..... :roll: Or NOT!!

Katie:choc: (I have just eaten a big bar of chocolate - yum!)

thanks for sharing your storys!i wish all us a healthy summer :?

alright everyone theres not much going on here latly where is everyone to?

iv been to the doctors today and got the results back and they say its not arthritis but tendonitis i have and that its common with cfs???

also he had a little listen to my chest and done some stuff and says he wants to put me on Beta-blockers as my heart races all the time and i get breathless(which i think we all spoke about above)lol

Im abit worried as im on anti inflammatories and amitripyline and also take pain killers and and just wondering if its all such a good idea?any advice?

Hey Everone

Sorry not I have not been around much in the past day or two but U returned back to work this week after 3 weeks off and "by eck" I have been in bed every night when I got home! To makes things worse we have been told about changes at work including our job roles and without asking on my thoughts I shall now be manage 2 Projects - YES 2 Projects!

I had SO much in response tp say BUT the words wouldnt flow!

Those words are still with me and and I know that this weekend, along with footie and showing my daughters pony I may at times feel quite unwell. Its amazing how emotional exertion can inflict such pain physically.

I am sat here in my PJ's after 3 hours in bed after coming home from work!

Donna x

Hi there Matt

Yes, it has gone really quiet hasn't it? Maybe everyone has gone and overdone it this week like I have. :roll: Thought I was doing so well - and then - wham, bang - back to square one. When will I learn? I mowed the lawn - can't believe I did that - STUPID!

I'm so pleased with your results though - tendonitis is a pain, but at least it doesn't last for ever and doesn't damage the body like arthritis can do.

I'm sure too you will find the beta blockers really help - the pharmacist wouldn't dispense them if they didn't mix with your other medication - (they are far more knowledgeable than GPs!).

Let us know how you get on.

Have a good weekend everyone!

IS THERE ANYONE OUT THERE?:huh:

Katie

Oh yes, I am here - just.

Mowing the lawn? :shock: That's almost as bad as stripping and resealing the kitchen floor which I did on Monday night after 4 weeks of waiting for husband to do it. Stupid woman. It's cost me £30 today at the chiropractor. I haven't been able to [i:18ba96ba8f] move[/i:18ba96ba8f] since Tuesday morning, not without pain and copious amounts of paracetamol, codeine, brufen anyway. I've had minted peas fresh from the freezer on it, and a wheat bag fresh from the microwave. It's getting there, slowly.

:bleep: floor will have to stay [u:18ba96ba8f]un[/u:18ba96ba8f] stripped and [u:18ba96ba8f]un[/u:18ba96ba8f] resealed next time. Flippin' men, why can't they ever do what they say they will. :roll:

Hi everyone

Alicia, please don't get me on the subject of MEN (sorry boys!). I'm always hinting at things that need doing - falls completely on deaf earsl and I always end up doing things myself. Why do men have such selective hearing? :evil: (Matt is now thinking up a stinging response .... )

We have several tubs in the garden, and to make thiings easier I decided last year to plant little conifers, rather than flowering plants - I've asked many times for them to be watered as the rain does not seem to penetrate them, as I find carrying a watering can really heavy with my fibromalgia - apart from one they are all dying. :evil: Great!

Well, the sun is shining here and it's really warm already - and I feel really c***! If you look under a recent posting on fibromyalgia SES has printed (or even written herself, I'm not sure) a poem that describes us all exactly.

I've spent more time correcting this than typing it - my hands are just not functioning today - so I'd better close before I say a very rude word!

Take care everyone. (Donna, DON'T overdo it:nurse: )

Katie

I have asked for Max Dog's nose art to be cleaned from the living room window where he looks out and barks at anything and everything passing by. I shall see how long it takes to get done.

I shall [u:5d697b06fe]not[/u:5d697b06fe] attempt it or it will cost me another £30 :roll: