Posted , 7 users are following.
Hi, I have been dealing with LS for 3 years now and just recently had to have iron infusions for anemia. That made me think there could be some causal connection there. Does anybody else have LS and iron deficiency with low iron or/and low ferritin?
0 likes, 9 replies
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justine89448 Vita23
Posted
Yes I do I also have problems with my B12 but I think the link is between a weak gut so we find it difficult to get correct vitamins from our food. I think leaky gut or autoimmune/intolerant towards certain foods creates inflamation and so on
beverly52803 Vita23
Posted
I've always read we shouldn't take iron after menopause, hence the "over 50" vitamins sold without it.. Does your doc have any explanation of the anemia? Does it have anything to do with lupus? I have a friend who is trying to determine if she has it. She has extreme fatigue. No LS though.
I was anemic as a teen over 50 years ago. Assume when GPs order annual blood panels they check for anemia(?) Is that how you found out?
Vita23 beverly52803
Posted
The anemia is due to heavy period bleeding and fibroids ( estrogen dominance). I don't have fatigue.
paula63519 Vita23
Posted
Hello there
I was severely iron deficient around ten years before being diagnosed with LS (but I had symptoms for up to 5 years at least before that). I wasn't given infusions but put on iron tablets long term and advised to stay on them permanently by a GP whose wife had a similar issue. I still take iron syrup daily and my levels are normal so it must be needed.
So you may have a point on the connection ...
Vita23 paula63519
Posted
I could not tolerate the iron tablets, but I did have anemia before I got LS. What iron syrup do you use?
paula63519 Vita23
Posted
Hello there it's a form of generic ferrous fumarate I get prescribed comes in sugar or sugar free, depending on the budget I get either one.
beverly52803 Vita23
Posted
Is floradix still a popular choice? As a teen-ager I thought it was delicious.
nawal22655 Vita23
Posted
hi yes actually i have LS since 2013 and I did blood test and i have anemia and my doctor suggested to give me iron for 3 month and now this is my 2nd month and I'm waiting to see the result, and if you have any advice for me please don't hesitate to reply me and hope you get better.
thank you
sincerely
Vita23 nawal22655
Posted
I felt amazing after the iron infusions, and I had to have them, because I stopped tolerating iron tablets. I would throw up, and my stomach would hurt badly. I also developed reflux that would cause problematic EKG results, and hormonal issues. So, finally, I found out I also have Lyme. Looking back on all my odd symptoms, I have had it for many decades. I live in a southern state, where officially they have no Lyme (I was raised elsewhere), and doctors did not even want to hear about testing me. I finally found one I persuaded to do it, and am now undergoing Lyme treatment, so very curious if my iron and hormones will normalize after the antibiotics. The positive antibodies were very specific for Borelia. I do believe I am heterozygous for a gene that regulates iron absorption, hence I was able to live for decades with Borelia as my body could function even with downregulated iron. I never had the bad neurological or gut side effects of Lyme, but those are usually due to co-infections like Babesia and Bartonella, which I probably do not have. The Borelia spirochete, however, loves the female genital tract, and as pH goes up with age, Borelia finds it more hospitable. A close friend had in the past a Staphilococcus Aureus infection that got into his tissues, and ate part of his hip. The doctors could not find the infectious agent until they got a second biopsy from that very spot deep down. A superficial tissue first biopsy just above that spot did not show anything. So, even testing is not easy. I would say if you have LS, run an infectious panel, if you can persuade a doctor to do it. You can even do a fecal PCR infectious panel test (GI Map functional test, not covered by insurance), or just particular tests for each infection like Lyme. Some of these infections, like Borelia, are not consistently in the blood, but in the tissues, which is why the tests miss them sometimes, soyou should evaluate your other symptoms, too. The body would never just mindlessly attack a tissue over many years despite steroids, which disable immune reactions.