Is a physiologic dose of steroids for adrenal fatigue safe for someone with FQ tendonitis?
Posted , 4 users are following.
Hi, have tendonitis everywhere after more than three rounds of FQ antibiotics. I also appear to have some adrenal issues, and my relatively alt-med Dr. wants to put me on physiologic doses of a steroid to help with that. No one in the state of Alaska (that I know of) has treated someone with FQ toxicity, and I don't think he's even researched whether this might be safe or not.
Thoughts? Thanks so much.
0 likes, 7 replies
miriam65408 kristen07930
Posted
Hi Kristen,
Don't do it! The adrenal issues are most likely caused by the FQs and steroids are very well known to make matters worse. I very strongly suggest you look into this as much as possible. There are many places you can find out but I am not allowed to post urls on here. If you are on a well known social media site to do with faces and books you can find seriously big groups with many members who might have come across this particular problem. I'll ask around in the groups and will reply again if I get a useful answer but please do use these or other forums as the health professionals really don't have a clue, even the alt med guys. In every country it's the same story, sad but true.
miriam65408 kristen07930
Posted
I've asked someone and they suggest you see an Endocrinology specialist to be properly evaluated. This person produces no Cortisol at all (for whatever reason) and takes Hydrocortisone which is about 1/4 of strength of steroids such as Prednisolone. It replaces what should happen naturally. Adrenal Insufficiency can also be caused by steroid inhalers and is a bit like Addison's disease but not.
The dose is 3 times daily, mimicking the body's natural times for producing it. This person suggests that if you have a similar problem then the steroids would be very strong and would only be used in an Adrenal Crisis, (where you might die...).
The short answer is to find out exactly what your problem is.
kristen07930 miriam65408
Posted
Miriam, I'm not a Christian, but God bless you. Thank you for your reply. I'm going to get on the well-known social media site and others and do some more research before deciding, but both of your comments were extremely helpful.
kristen07930 miriam65408
Posted
Miriam, I assume the person you talked to has been hurt by quinolones, and doesn't experience exacerbation of any symptoms with the use of hydrocortisone? Do they have tendonitis?
miriam65408 kristen07930
Posted
Yes and yes, apologies for not making this clear. Not just tendonitis but bedridden for 6 months from ruptures tendons (which can and does happen after FQs). I believe this person's symptoms are not made worse by this tiny, regular dose. It was also made very clear that can be a life and death thing and if they get stressed they need to double the dose temporarily (which our body would naturally do, I guess.)
You need the endocrinology specialist to sort out exactly what has happened with you. It's common for FQs to cause various endocrine problems e.g. see the recent FDA announcement about FQs and diabetes as they mess up the pancreas. Thyroid and adrenaline problems are also common and many 'floxies' discuss their problems re these issues on the group. Look for one called fluoroquinolone toxicity group, it has over nine thousand members. It's based in the US but has members from all over the world. If you're familiar with these groups you'll know there is a 'search this group' box where you can type a topic (e.g. adrenal problems) and it will bring up relevant posts - a great help! Some of the members are experts and some novices so pick and choose the information carefully. Other sites such as floxie hope and hormone matters will also have informative articles. (Sorry I can't give urls but they should be easy to find). These also give info about why steroids and NSAIDs are not good for floxed people.
I'm not a Christian (or anything) either! I just believe in doing the right thing and these man-made drugs are definitely NOT the right thing. Whatever you were given them for there would have been an alternative available. Three courses is about right although some people are affected by just one tablet while others say they've taken maybe 50 courses before they knew they had a problem. It apparently depends on your genes. Were you warned by your doctor about possible side effects? The FDA announcement of July 2016 said that all patients and healthcare providers must discuss the possible side effects because the risks, in most cases, can outweigh the benefits. I'm willing to bet folding money that your doc had no idea about this!
I wish you all the best and hope you get your problems sorted soon.
kristen07930 miriam65408
Posted
...so this doctor also wants to put me on thyroid meds for thyroid hormone resistance. I've been reading so much about the musculoskeletal effects that I haven't connected my new metabolic issues to the FQ toxicity. Ok; I've connected on your recommendation to the social media site and I'm now adding the other forums you mentioned. Good to know though that your contact is successfully taking low doses; I'll keep that in mind.
Your replies have helped me a *lot*.
miriam65408 kristen07930
Posted
No one should have to suffer from FQ toxicity and one of the worst things about it is that no doctors seem to know anything about it - and they really don't like you saying about it.
I hope I have helped in some way. Find out what you can about it. Good luck