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Is anyone on here from the Essex area in the UK

Posted , 5 users are following.

jackie770271
jackie770271

Hi. I have recently been diagnosed with LS, I live in Essex and would love to hear from anyone also in Essex in the same boat as myself. smile

1 like, 8 replies

8 Replies

  • Holiday_girl
    Holiday_girl jackie770271

    Posted

    Hi Jackie I live in Essex Nr Romford where do you live. I have suffered severe itching for 12 years but got diagnosed a year ago and what a relief can sit and watch TV in peace. I am 70 so think it was due to menopause . Have to go got to take grandchildren home but your welcome to reply will see it when I get back.
  • nannylin
    nannylin jackie770271

    Posted

    Hi jackie I was diagnosed over ten years ago and live in Essex . I am currently being treated by a dermatologist at whipps cross hospital who is brilliant and has helped a lot.
  • carol350
    carol350 jackie770271

    Posted

    Yes I have it and live in Essex and Deprabase has saved my life and steroid cream mine started 2years ago after a bladder and bowl op I was very sore after the op and it has never gone I also gave Lupus and ME I live in Chelmsford 
    • Holiday_girl
      Holiday_girl carol350

      Posted

      Hi Carol350 sorry to hear you have this as well as your other problems must be horrible. I live in Harold Hill and replied to Jackie who turns out she lives next road to me so we are going to meet for a chat soon. Have you tried Hydromol I find it very soothing use it every day. Take care Carol
  • anne93147
    anne93147 jackie770271

    Posted

    Hi Jackie,

    I am 60 years old & live outside of Brentwood & was diagnosed July 2014. After many months of NHS appointments & going privately I had to travel outside of the area for the diagnosis. I would be interested to know whether there is the expertise at local hospitals who can provide support as that would be easier for me?  My symptons come & go but are far better than this time last year. I use Dermovate Ointment at night as prescribed & Diprobase ointment during the day. I only use Epaderm cream for washing. I have given all my 'nice' shower gels away & only use baby shampoo for washing my hair in the shower.  i am getting used to the routine but do sometimes wonder 'why me'?  I know there are worse things but i used to swim regularly & that has stopped as chlorine doesnt help at all.

  • jackie770271
    jackie770271

    Posted

    Hi Anne, in November 2013 i was referred to a gynaecologist at Queens but after being messed around by a gynea that didn't give me any faith in what she was doing or saying I was transferred in October 2014 (at my request) to a gynea at Broomfield in Chelmsford. I had a biopsy in November 2014 and have my follow up apt in March. Not really sure yet whether she is going to keep me as a patient or refer me on to a dermatologist, as that seems to be the route of some people on here. I have just managed to calm everything down again after the biopsy and I'm hoping it stays that way. Where did you go privately, aren't you able to continue with the private doctor as an Nhs patient. 
    • anne93147
      anne93147 jackie770271

      Posted

      Hi Jackie, To cut a long story short. After a year of so of being told by GP that I had either UTI's or Thrush I was referred to Broomfield. That was a waste of time for me. Consultant suggested it was an 'age' issue & that I should use yogurt for the thrush & go to back to GP for HRT so I was discharged. Obviously I didnt improve so I went back to GP who said as I had been discharged I would have to start all over again which could be months as not an emergency (in their eyes). I decided to go to a private consultant in Brentwood who was brilliant she felt it was an auto-immune problem & referred me to a Consultant at the Royal Free.  I enquired with my surgery whether I could see this Consultant under the NHS as it was a different trust but they said it wasn't possible so I've been paying for my treatment. I would like a local support group / hospital for day to day problems.  It seems in certain areas of the country there is expertise but it seems to be lacking in Essex. 
  • carol350
    carol350 jackie770271

    Posted

    Hi all I did post below but I forgot to mention I am under a dermatologist at broomfied 

    who is great she is Dr Harrison and such a lovely had loads of differant creams but had found Deprabase jel it's like vasalene is amazing not a cure but I use it every time 

    I urinate and it helps and  steroid cream daily x

    i am 70 and have a problem leaking so now I have to see another doctor to sort that out as it does not help the. Soreness ,

    went to a clinic Monday when she looked she said you are so sore ,I thought tell me something I don't know ,

    it's very rare my lady doctor at my surgery said I was the only one she sees with it but 

    she had another lady who has come to her with and said she is going to treat her with what I am having from my dematoligist so at least I am helping someone else x

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