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I have been diagnosed with CRPS and am currently taking 1,800mg/day of gabapentin to deal with my pain.
In May 2014 I had surgery on my foot after breaking all my foot metatarsals in multiple places in a car accident. After (finally) getting my many casts off I went to physical therapy and re-learned how to walk. During this time of re-gaining function, my foot never felt like a foot or like it belonged to me: it felt like my foot was wrapped in cheap bubble wrap. Since I had no idea what a foot should feel like after breaking a lot of bones, I accepted this as 'normal.' I would often tell my Physical Therapist that even though it seemed like my foot was getting better, it didn't feel like a foot, or like it 'belonged' to me.
By October 2014 I was walking pretty well and thought I could move back into my life.
One morning I woke up with a giant toothache, went to the dentist and was told I needed oral surgery. The dentist injected me with about 50 injections of novocaine and pulled my tooth. The next morning I was in insane pain. My face was spasming non-stop, my jaw was throbbing, my face was swollen and I thought I was going to loose my mind. I called the dentist and he seemed unconcerned, just told me to finish my antibiotics. The pain did not diminish. It was/is the worst thing I have ever experienced. The pain continued for over a week lasting at least 8 hours at a time, then a little respite. A week later the face pain vanished and my broken foot swelled up like a basketball, felt like I was being stabbed by hot needles and was hot enough to fry something on. After my foot surgeon refused to see me and told me there was nothing the matter with me (based on a photo!), I found a great doc who diagnosed me with CRPS and put me on gabapentin.
Sometimes the gabapentin works, sometimes it doesn't, but this drug freaks me out and I don't want to be on it for the long term. Is there any way to beat this condition? Does anyone know? It seems like the longer I am on gabapentin the more it takes to reduce my pain, and sometimes it makes it worse! I have read that it is a very hard drug to come off of.
I just wish I knew if this is a life long condition and if I am going to have to spend the rest of my life on drugs. I HATE TAKING DRUGS. I am the person who will barely take an aspirin...I see people on this forum that have been on this drug for years, so I will seem like a newbie to you guys, but honestly, I am scared.
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