Is Ear Syeringing Safe with M.D.
Posted , 5 users are following.
Hello All,
I am new to the forum and looking for advice.
I have had M.D. for 17yrs in my left ear my right ear as always been
fine but in the left ear i am vertually death and what i do hear is to
distorted to make out..anyway im getting the same symtoms that started
M.D. in the left ear i.e. tinitus and intrusive high pitches that come and fade out
quite quickly..my doctor perscribed olive oil once in the morning and at night
after 4days of doing this i went almost totally death so stopped it..i could hear
the oil grinding as i ate so used cotton buds to to get rid of the oil also some..
my hearing returnd but i started getting drop attacks as many as 4 in four days
followed real unstable stability every step felt like the ground moving under me
i am terrified this syringing may damage my only good ear its done at my local surgery
and im worried they make bring on attacks by this prosses..the doctor told me that
without the syringing the E.N.T. wont see me. i believe my right ear needs regular
monitering for my own peace of mind...i no the chance are 50/50 as to getting it in
both ears although it doesnt stop the worring..i would be interested in how M.D.
started for other people and if people hear have it in both ears.....thanks...
0 likes, 13 replies
Bertman stephen61100
Posted
Hello Stephen, Meniere's started in the left ear and then progressed to include the right ear. First symptoms was violent vertigo, which caused a malady of issues. The tinnitus started at the same time in the left ear. I had dizziness and off balance during the attacks, but eventually the symptoms would subside until the next attack. As time passed the attacks became more frequent and lasting longer than the attacks before. The tinnitus became chronic in the left ear. The dizziness became chronic with or without vertigo attacks, and then eventually meniere's became bilateral expressing tinnitus in both ears, loss of balance and I needed a walker to ambulate.
I used the walker for about a year until I could no longer balance to the left or right. and would fall back away from the walker. I was then introduced to a wheelchair, which I hated at first, I cursed that wheelchair until I achieved the ability to operate it. Then the Doctors set up with a powerchair, all new experience! This was part of a two year rehabilitation program, along with balance therapy, medications, It was then I had to accept the fact that meniere's had took my balance and I can no longer walk. So now I have settled in and know where I am with this disease.
ø¤º°`°º¤ø-:¦:-•:*'""*:•.Bertman •:*'''''*:•-:¦:-ø¤º°`°º¤ø
mary16977 Bertman
Posted
Bertman,
I'm new so may have to play catch up with those in the group
but if you're comfy sharing, may I ask if you've explored the surgical options? I'm scared to death of any surgery. I have decent mobility at this point, am able to compensate for my ever-present dizziness, I'm still working and enjoying my farm and I told my docs that if everything stayed just the way it is for the rest of my life I would be so happy. Then I got sad that this is my reality and I've had it for so long I wish for it not to get worse instead of wishing for a normal, regular day...the likes of which I haven't experienced for going on two decades. lol
Your good attitude is infectious and I so enjoy your spirit while dealing with MD. ~Mary
Bertman mary16977
Posted
Hello Mary, Thank you for your kinds words, I didn't always have a good attitude, I just posted a true confession and told of what inspired me to wake and smell the coffee (Decaf) lol. As far as surgical options, I have seen three specialists, here and at K.U. my vestibular nerves are damaged and have already disassociated themselves in distribution of balance signal to the brain. Surgery has risks and the Docs do not think it will make any difference in my balancing ability and the aftermath of the surgery could lead to further complications
Bertman
Candy1130 Bertman
Posted
stephen61100 Bertman
Posted
Sounds like you are really going through a tough time.
I didnt no things could get so bad and feel for you..
i have thought about an electric mobility car until i see one go past me
because there so low to the ground the guy looked like he was being
rocked all over the place and just watching maid me feel sick..
I dont or carnt youse public transport because of this also it has brought on
panic attacks which are as bad as drop attacks ..It does feel like the meneires
is creeping over to my left ear with tinitus and intrusive high pitches come and faid
out..also the spinning has got wierder it started off horizontal side to side now it has been
vertical up and down and also staggerd where it stays around centre a bit like taking a
video on a dirt track judderd..i really need to talk to a specialist about it but my doctor wont
refer me until the ear is clear of wax..nature puts ear wax there for a reason and that reason
is probably to protect the inner ear..so messing with it might be a mistake...again i wishe you well
and admire your spirit...
Bertman Candy1130
Posted
mary16977 stephen61100
Posted
Hello Stephen,
I'm so sorry to hear of your new issues. Especially those drop attacks, which are so scary. I have MD in both ears, worse in my left ear but my right ear is catching up
I recently got bilateral hearing aids as my hearing loss became permanent and am adjusting to those. Never thought I'd be wearing hearing aids at age 58, but here we are.
I've never heard of the olive oil syringing...that's a new one on me! What is the idea behind it? How is it supposed to help? My ENT will flush my ears to rid them of wax build-up as needed but he's never mentioned oil. Ask your GP or ENT if they can refer you to a good neurotologist or vestibular specialist who is really good with MD...maybe they can give you some insight/advice? Life with MD in both ears can be done and you can be helped! Be your own strongest advocate and keep pushing for answers and some relief. What does the rest of your daily treatment consist of, if you're comfortable sharing, may I ask?
No matter what, keep smiling and stay positive...don't give up. You can do this! ~Mary
stephen61100 mary16977
Posted
Sorry to here of your condition,
I live in the united kingdom.
Olive Oil is like an old remerdy for loosening ear wax and then
you swab it out with cotton bubs..it is generaly not advised by doctor
to use anything that could damage the inner ear..when the E.N.T.
audio guy told me to do this i was a bit apprehensive the E.N.T. guy
was mobile he visits your surgery at the request of your doctor and performs
and audio test..i would must rather of gone to the E.n.t. hospital were my records are
held....he also said about fitting an hearing aid..my left ear has taken over from my right
and as you probably no the wind in the damaged ear throws you off balance and lorries buses
vans all sound like jet plains going past do the same thing..do the hearing aid take much getting
used to and is it noticeable when there out..i.e. if you shower or sleep....
mary16977 stephen61100
Posted
Stephan,
That's interesting...I don't know if it's common to use olive oil for loosening the wax here in the States. It doesn't seem to be in my neck of the woods. The doc just flushed mine with a contraption in his office.
I'm still adjusting to the hearing aids, it's been a process for me but my audiologist tells me to be patient. At first I couldn't stand it because I'm also sensitive to the very loud, abrupt noises so even my microwave beeping was so piercing to me! I went back and doc recalibrated my background noise reduction, gave me extra volume controls and activated a sound compression feature my aids have, supposedly that takes the sting out of high pitched or loud noises. It is helping. The key is getting the correct hearing aids for MD and an audiologist who understands MD because we don't have age-related hearing loss, the sounds we are missing is what makes things sound distorted and makes things garbled and makes songs sound different to us. Many songs I know and love don't sound right to me anymore and that's sad
As far as my experience so far, I have no issues taking them out to shower/sleep...I just immediately revert to not being able to hear as well. I experienced worse tinnitus at first (that seems to be leveling off) and I felt dizzier/loss of balance but I also think that's getting better. It helps to be able to turn them down when my brain is feeling overwhelmed. I'm going to keep trying with them because the doc told me that was the best thing to do.
Keep the faith...keep fighting.
Mary
stephen61100 mary16977
Posted
Thanks for the Info..
When you think about hearing aids what are ..they are in essence
merely an amplifier..i was told by my E.N.T. that an hearing aid would
not work for my infected ear as is was to damaged it would only make
the distorted sounds louder ..the latest audio tests i had done he told
me the hearing in my right ear is fine for a person my age then told
me to use olive oil drops or spray and let nature do the rest also he
said if things dont improve we can look into an hearing aid ..but here
lies the problems ..i am getting tinitus in my good ear plus high frequency
pitches that sound and fade out again im thinking if i have a hearing aid
it would also make those sounds louder in my good ear...im a musician
and play several instruments if i close off my good ear it is a semitone
lower in pitch two different sounds as you discrbed most guitarist look at there fingers
i dont i have to look at the hole in the guitar so it favours my good ear but
thank god i can still get pleasure from listening to music if its turned down low..
I have other illenesses C.O.P.D Sciatica Arthrites and the usual anxiety and depression
if i could not play my instruments ..i would be heart broken...best wishes..stev..
Bluesmann mary16977
Posted
You also have hyperacusis as I do. That is when you are sensitive to certain sounds....I wish they would find a cure for that. A friend took anti fungal meds and it relieved his....I tried that and it did not work. So we have MD and hyperacusis...good luck with the hearing aids,.....my audiologist is going to a seminar on hyperacusis soon...I will report here if I find anything interesting or helpful
Bluesmann stephen61100
Posted
Streve I am also a musician and its so hard at time...ive learned to adapt and use earplugs in bad ear as the sounds drive me crazy when playing live I use in ear monitors now with the bad ear shut off......I could not go without listening to music......Good luck to you but it sure isn't the same as it used to be I used to be able to hear every little cymbal guitar string bell, etc....
Bluesmann stephen61100
Posted
Cotton is not good in tje war as it can break off and cover the eardrum etc. I've not heard of syringing might want a second opinion