1. Community
  2. Bones, joints and muscles
  3. Fibromyalgia Syndrome

Is fibro heredatory?

Posted , 6 users are following.

hazel70459
hazel70459

First off i am sitting here thinking the only part of my body that doesnt ache is my head eek, then I thought ahhh what would it be like to be pain free, even when i am in bed i have to keep switching sides because of pain. Then I looked over at my daughter and thought please god she doesnt suffer like this or my son. My dads ( who died at 43 brain tumour) half sister ( same mum) has Fibro and her daughter ( my cousin). I asked the doctor but he didnt know . For me I feel there has to be more to fibro than just specialists saying its a trauma or depresion. I am hearing more and more people talk about fibro. Why would we all be in so much pain just because somthing once happend to us, and why would doctors prescibe pain relief if they think its just in your head?. the pain is very real and pain relief can help ease it, I dont know about you but every day i wake up thinking I hope i have a pain free day , if thats not positive thinking i dont know what is.wink. Any way just wondering if anyone else has family members suffering the same. night night have a good nights sleep. Ha ha had alot of questions.  

0 likes, 8 replies

8 Replies

  • christine26761
    christine26761 hazel70459

    Posted

    I have had it for over 20 years and was told on numerous occasions that it definitely is not..I'm of course not suggesting  that others in  the same family can have it...:-) xxx
  • bluesman
    bluesman hazel70459

    Posted

    In my case I think there may be a genetic link. I think my mother may have had fibro but was never diagnosed. One of my daughters has ME and the other has epilepsy. I think the daughter with epilepsy may also have fibro but this is dismissed by the docs.  She has several classic symptoms though. On the other side of that mind you, I did have a very bad accident when I was a young adult and have also had significant stress. My daughters both had difficult births so there could be other reasons. I keep my pain at bay somewhat by taking calcium, magnesium and vit D. I take double the RDA  of the Boots tablets. This route may not work for everyone as the tablets would seem to make some people exhausted. This may be due to interaction with medication. However it works for me with pain relief I would judge at 80%. 
  • Carinaeta
    Carinaeta hazel70459

    Posted

    No one in my family has fibro except me and no one has or has ever had the symptoms. However, I am sure that i was born with some kind of genetic dysfunctional brain thing as I have dyscalculia, migraines and v mild epilepsy, all stemming from the same part of the brain. Also I didnt have an accident or operation triggering the fibro off, I think it was stress related.
  • wendy22970
    wendy22970 hazel70459

    Posted

    My Mum suffers with it and she is 82 now, it was called 'fibrositis' years ago. My Sister and I  have also recently been diagnosed after us both suffering with symptoms for over 20 years, so it must be hereditary.
  • JulieBadger
    JulieBadger hazel70459

    Posted

    I am worried about the same thing.  My daughter is 9 and my son is 6. I am very worried I might of passed it on to them.  In the 23yrs I had Fibro & M.E. I don't remember a single day not being in pain.  When it wasn't so bad it would just be the straightening out in bed that was painful.  Now I am riddled in pain and taking 10 tablets a day just as pain killers.

    At least I know that I will be sympathitic to them and try to help them achieving their dreams whilst still coping with Fibro or ME/CFS if they do get it.  Which will emotionally help them a lot I think.  x

    • hazel70459
      hazel70459 JulieBadger

      Posted

       Thank you for replying , I understand as i am sure at some stage its crossed all our minds. I spoke to my mum as i can remember her carrying on with jobs even though i could see she was in pain, her knees would swell and she had back ache truth is she had a rough childhood, so did i and my daughter was bullied in primary and high school just becasuse she read books and got on with things she went through depression in her early teens , i recognised this and got her help ASAP . Now she is in college instead of sixthform and doing fantastic she has friends and goes out and remains true to herself i am so proud. I just hope this doesnt affect her in later life. I had cbt which was fantastic for me and want to enjoy life so i am thinking ok i have sorted my cr*p out so why am i still in sooooo much pain? .My mum has never been diagnosed but remains in pain she now thinks she could have fibro. I feel like you IF my children do suffer in the future I can learn now to help them after all thats what mums do. I feel if i sit down and bury myself that wont do any good, so i remain positive for my husband and children.They know when i am having a bad day, My son ( 15) will put a blanket on me and get me water and a hot water bottle (ha ha sound like a family pet) and my daughter checks on me. I feel blessed. Husband is learning still ha ha. 
  • bluesman
    bluesman hazel70459

    Posted

    Your daughter's experience is similar to my daughter's
    • hazel70459
      hazel70459 bluesman

      Posted

      Hello bluesman, Its so hard for them somtimes, she really had a tough time, but shes come through it now. I  told her Kalma , so believe in that. biggrin 
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.