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Hi All, I have been diagnosed with HS and like many of you i have gone through all if the antibiotics and im now onroaccutane (which has worked as yet), I have been to see the occupational nurse at request from my employer. The nurse told me she knew nothing of this desease when i went and by the time i cam out she was telling it wasn't a desease but she did except that i had a condition? (Nurse becomes scientist, i think not).

I have a feeling my employer are going to get funny even though i have only had one sick instance since sept 2006 when i was diagnosed with HS. When i went into hospital to have my arm drained i took a week off using my own holidays so that the district nurse could make visists to pack my wounds, (I got no thanks from my company for this).

I am wondering if any of you know whether HS is covered under the disability discrimination act?

Please post back if you have any information about this.



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  • Posted


    Yeah sounds so familiar, I've had it for years and had numerous times of work because it has imobilized me, as far as I know work can't be funny with you, I got my specialist to write me a letter giving full detail of how it affects me and that there is no cure no reason why you get it so no they cannot be funny with you, you have a medical condition, they will try though, you just have to get more evidence to protect yourself. Alot of us on this site are begining to think that diary food has alot to do with getting HS. As far as being disabled I'm looking into it because I also have Cervical Spondylosis and my Doc's told me to find another job but who will employ me now. Keep your chin up and don't let them grind you down. Let me know how you get on. Take care.

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  • Posted

    I also wanted to add yes unfortunately you will come accros lots of nurses who have not heard of it simply reason because it's known as rare, not on this site though thank God.
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    Hi ive just found this site is suffer from HS at stage 3 and im a male which they say is quite rare in men.I am 30 and have just been pensioned off from my work because i come under the rules for the pension on ill health.i have had major surgey across my waist with a nice(not) 21 and half inche scare and two weeks later it came back with serious force.I tryed roacotaine and laser surgey that have all failed.i have tryed every drug that they can give and none seem to work.last time i saw the doc they told me just get on and live with it??i was offered infleximab but when speaking to the doctor they did say it could cause cancer as you cant use with open wounds well most HS suffers Know that they always have open wounds!They have just put me onto gabapentin 400mg x 9 pd plus tramadol and codine but it still doesnt help the pain.i cliam disabilty because some days im unable to walk let alone dress myself because of the pain.but yes it does come under DDA get your self into a union if you are already not.i had to put together a pack to show my employers as they just thought it was spots?!?!?what do they know.Also did you know that most suffers of HS suffer clinical depression because of the pain and they can not cure deppression with out curing HS.Hope this helps if you want to know anything else give me a email:- ******** hope this helps neil

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  • Posted


    i am also getting sent to my works doctor for this, my bosses don't believe that there is no cure, i have only been off work with this when i have had my operations 3 so far, now work are trying to find out if it comes under the DDA. i am not sure, i have just been signed off work today as i can hardly walk as my knicker line is up.

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  • Posted

    Hi just to let u know i have had exactly the same experience with work and am now on the final sickness stage! i have had HS for 7 years and somedays i can hardly walk with it. Just to let u know it is definately covered by DDA as this is the reason i am still employed!!! take care
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