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Is inflammation of the central nervous system a possible cause....?

Posted , 5 users are following.

mazpaz
mazpaz

If, as I've been reading, inflammation of the central nervous system is a possible cause for the symptoms of cfs/me then why aren't we offered brain scans as part of the treatment process? Does anyone know? When reading up on the symptoms of disease of the central nervous system there are many that overlap with cfs/me symptoms and therefore could the treatment of the central nervous system issues be looked into for cfs/me treatment? What are everyone's thoughts?

Paz

0 likes, 5 replies

5 Replies

  • needalittletlc
    needalittletlc mazpaz

    Posted

    Hi Paz,

    My understanding at this point is that they are very close to isolating (not sure if this is the right term) biomarkers which will point to inflammation in the cns. This is according to the ME specialist I saw. If you look on the hummingbird site they talk at length about specialized SPECT scans of the brain which to me look like they're only done in research settings. I've had 3 brain scans, one with dye, but they wouldn't have had the right technology.

    I think they also touch on this in the new documentary out called "Forgotten Plague". If you go to their page on Facebook and "like" it There is a link there and a password to watch it. It's only free until tonight I think. Otherwise it will be available on iTunes, Google Play and Amazon.

    Once they find these biomarkers they can then start working on a treatment. Hopefully that happens sooner than later!

    I totally agree that it makes sense that it's the cns. I have had every test imaginable on different organs which show nothing physically wrong. Those organs getting faulty signals from the brain seems like a valid reason for all the fluctuating symptoms.

    So those are my thoughts smile

    Tracey

    • caitlin39841
      caitlin39841 needalittletlc

      Posted

      your thoughts make a lot of sense.  i thinkwe don't get scans coz 1)they are costly 2)many GP's still think we are malingering or it's psychomatic 3) there's a culture in the NHS that nothing can be done for MErs.............
  • june666
    june666 mazpaz

    Posted

    There has not been enough research on cfs it's herrendous.

    I feel that there is way more to cfs than we know.

    Research is definitely needed.

    Some GPS know very little as it is.

    It's so frustrating.

    Take care.

    June

  • mazpaz
    mazpaz

    Posted

    So we are looking at probably another 10 years before treatment might be available for the masses. Not a great prospect when your job is going down the pan now!!  

    Paz

    • caitlin39841
      caitlin39841 mazpaz

      Posted

      indeed, no great assurance there as jobs, health & the NHS goes down the drain.  

      kep on keeping on

      C

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